What Matters Most to Carers of People with Mild to Moderate Dementia as Evidence for Transforming Care

Abstract

There is little evidence on the experience and needs of carers of people with early-stage dementia and few evidence-based interventions to guide them. A qualitative research design was used to explore what matters most to carers of people with mild to moderate dementia to design individualized interventions. A descriptive phenomenological approach was used to analyze transcribed interviews. Three themes captured the essence of what matters most to 10 community dwelling carers. The findings reveal the importance of considering the unique and ongoing needs of carers throughout their journey as health care professionals strive to develop appropriate interventions.