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Home Accessibility and Adaptive Equipment in Duchenne Muscular Dystrophy: A Case Report

Stuberg, Wayne PhD, PT, PCS

Pediatric Physical Therapy:
Special Report on Genetics
Abstract

Purpose: This case report describes the history of a 26-year-old man with Duchenne muscular dystrophy. The report includes descriptions of the natural progression of his physical disability and the adaptive equipment and home modifications that were used to maintain independence.

Summary of Key Points: The transition from childhood to adulthood for individuals with Duchenne muscular dystrophy requires a physical therapy care plan that focuses on the use of assistive technology to maintain independence in mobility and to minimize or to facilitate caregiver assistance.

Recommendations: Disability in Duchenne muscular dystrophy can be minimized by the use of properly fitting and functioning equipment. Assisting the family with available equipment options, documentation of medical necessity, and coordination of services are all important tasks for the physical therapist in carrying out a comprehensive plan of care.

Author Information

Physical Therapy Division, Brace Place, and Motion Analysis Laboratory, Munroe-Meyer Institute for Genetics and Rehabilitation, University of Nebraska Medical Center, Omaha, Neb

Address correspondence to: Wayne Stuberg, PhD, PT, PCS, Associate Professor and Director, Physical Therapy, Brace Place, and Motion Analysis Laboratory, Munroe-Meyer Institute for Genetics and Rehabilitation, 985450 Nebraska Medical Center, Omaha, NE 68198-5450. Email: wstuberg@unmc.edu

© 2001 Lippincott Williams & Wilkins, Inc.