April-May 2012 - Volume 8 - Issue 2
pp: 4-40

Resource Central: Resources on Rare Diseases

Neurology Now. 8(2):37, April-May 2012.

Where to go for more information on the topics discussed in this issue of Neurology Now and for a directory of patient advocacy organizations.

Support Organizations for Trigeminal Neuralgia

Neurology Now. 8(2):38, April-May 2012.

Where to go for more information on the topics discussed in this issue of Neurology Now and for a directory of patient advocacy organizations.

Speak Up: Almost a Miracle

Lawrence, Chelsey-Ann

Neurology Now. 8(2):40, April-May 2012.

A young woman's story of living with the rare neurologic condition known as central nervous system vasculitis.

Photo Essay



Rich Clifford


Rocket Man: Astronaut Rich Clifford's journey with Parkinson's disease.

Farley, Todd

Neurology Now. 8(2):18-24, April-May 2012.

Former astronaut Michael “Rich” Clifford was diagnosed with Parkinson's disease (PD) in 1994 during the early stages of the disease, but it didn't prevent him from climbing aboard the shuttle Atlantis and rocketing off into space for the third time. “Don't let PD drive what you want to do,” Clifford says. “Remember that you're in charge of your future.”

Trigeminal Neuralgia


Facing Pain: Diagnosing and treating the intense facial pain known as trigeminal neuralgia.

Gordon, Debra

Neurology Now. 8(2):26-28, April-May 2012.

Trigeminal neuralgia is a neurologic condition that causes intense facial pain. “When you ask patients to rate their pain on a scale of zero to 10, they typically give a number greater than 10,” says neurologist Gary Gronseth, M.D. Fortunately, a range of treatments are available.

Rare Diseases


Too Rare for Research? People with rare diseases often experience significant delays in diagnosis and access to few, if any, treatment options.

Paturel, Amy

Neurology Now. 8(2):29-33, April-May 2012.

An estimated 6,000 to 7,000 rare diseases—many of them neurologic—collectively impact nearly 25 million Americans. People with rare diseases often face greater difficulties than people with common diseases in locating experts, receiving an accurate diagnosis, and finding treatment options. Here, we explore the ways that people with rare diseases are pushing for more research and better treatments.

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