The Dating Game
Navigating the dating scene is tricky when you have a neurologic condition. If your symptoms are obvious, potential partners may be uncomfortable or intimidated. If your symptoms aren’t so obvious, you may wonder when to tell someone about your condition and how much you should share. In this article, patients, caregivers, and experts share tips for putting your best (and truest) self forward.
On the Fast Track
The FDA has upgraded and streamlined its “compassionate use” policy for doctors to obtain experimental drugs for patients who are terminally ill or have a life-threatening condition for which there are no alternatives. Five states (Colorado, Louisiana, Michigan, Missouri, and Arizona) have also created “right to try” laws that make it easier for doctors and patients to access untested drugs, and an additional 26 states have introduced “right to try” legislation. Here, researchers and patient advocacy groups explain what conditions these medications affect, their risks and benefits, how to qualify and get access, and how to advocate for a more effective drug approval process.
When Orange is the New Black star Connie Shulman’s good friend and fellow actor Laury Sacks started losing her memory and ability to talk in her late 40s, Shulman and filmmaker Pamela Hogan thought filming Laury might help her remember things. Six months into the project, Laury was diagnosed with frontotemporal dementia. Soon after, she entered an assisted living facility. The filmmakers hope their documentary raises awareness of—and research funds for—this aggressive disease, which affects mostly younger people. Laury died at age 52. In this article, Shulman talks about her friendship with Laury and what she learned about this devastating disease.
Many neurologic conditions affect mood and behavior, turning previously sweet and agreeable people into aggressive, stubborn, and difficult patients. Medications can help with these mood disorders, but sometimes they just make things worse. Here, physicians, social workers, and caregivers share information about medication and other helpful strategies, including how to tell when you or a loved one need professional help.