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Pregnant Pause

Certain neurologic conditions like epilepsy, migraine, MS, and depression require drugs that may be inappropriate or dangerous for women to take while pregnant. Are doctors routinely sharing information about these risks with female patients who are in their reproductive years? Are women initiating conversations about these risks with their doctors? We get some answers from doctors and women in the know.

Sharing Stories

Ann Romney, wife of former Massachusetts Governor and former presidential candidate Mitt Romney, is putting some serious muscle behind the fight against multiple sclerosis, with which she was diagnosed in 1998. She has established the Ann Romney Center for Neurological Diseases at Brigham and Women’s Hospital in Boston, launched a social media campaign encouraging people who live with neurologic diseases to share their stories, and is publishing a memoir this fall. She tells us about her longtime commitment to changing the lives of people with MS and other chronic neurologic illnesses.

Ability First

Elizabeth Espinosa, an Emmy-winning reporter for KTLA in Los Angeles, spent much of her childhood caring for her brother, who was severely disabled due to a lack of oxygen during birth. Today, she is a passionate advocate for the rights of the disabled, and volunteers with several community groups and nonprofit organizations. She talks about how her relationship with her brother influences her work in defense of the very vulnerable. 

Managing Chronic Fatigue

Chronic fatigue syndrome (CFS) is real, says a new report from the Institute of Medicine, which also identifies five major diagnostic criteria. We analyze the report, talk to CFS experts, chronicle a patient’s experience, and provide tips for managing the condition.

Help Is Here

Asking for and accepting help isn’t easy for many caregivers. We speak to former caregivers and other experts to find out how to adjust to professional help, both emotionally and practically—and how to restart your life post-caregiving.

 

Resource Central
HELP FOR ALL NEUROLOGIC DISORDERS

American Academy of Neurology website
aan.com/patients
1-800-879-1960

CaringBridge® (free, personalized Web sites to support your health journey)
Caringbridge.org
651-452-7940

National Institute of Neurological Disorders and Stroke (NINDS)
ninds.nih.gov

NINDS Clinical Trial Finder
http://www.ninds.nih.gov/disorders/clinicaltrials_us.htm

Well Spouse Association
wellspouse.org
1-800-838-0879

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The Basics

Neurology Now Basics provide key information on individual neurologic conditions, including what causes each condition, how common it is, how it is diagnosed and treated, and what research is being conducted.

Editor-in-Chief:
Orly Avitzur, MD, MBA, FAAN
New York Medical College

ISSN: 1553-3271

Online ISSN: 1553-328X

Frequency: 6 issues a year

Find a Neurologist in Your Area

http://patients.aan.com/findaneurologist

Neurology News
NEUROLOGY NOW
Read the most current news on neurologic diseases here! And we want your input. Leave your comments at the end of each article.

Latest Entry: 8/28/2015 Spouses of Stroke Survivors Report Long-Term Health Problems

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NEUROLOGY NOW
Click here to find more content from the articles appearing in the latest issue of Neurology Now.

Latest Entry: 7/7/2015 Concussion: Lab Meets Locker Room and Discovering Biomarkers

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Speak Up
Editor
The Speak Up blog features essays and poetry by people living with neurologic disorders and their caregivers. Readers can also find letters to the editor.

Latest Entry: 8/31/2015 Ode to Parkinson’s



For info on symptoms, diagnosis, & treatment of Pompe disease, see the Pompe Disease Awareness Resource.