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The Dating Game

Navigating the dating scene is tricky when you have a neurologic condition. If your symptoms are obvious, potential partners may be uncomfortable or intimidated. If your symptoms aren’t so obvious, you may wonder when to tell someone about your condition and how much you should share. In this article, patients, caregivers, and experts share tips for putting your best (and truest) self forward.

On the Fast Track

The FDA has upgraded and streamlined its “compassionate use” policy for doctors to obtain experimental drugs for patients who are terminally ill or have a life-threatening condition for which there are no alternatives. Five states (Colorado, Louisiana, Michigan, Missouri, and Arizona) have also created “right to try” laws that make it easier for doctors and patients to access untested drugs, and an additional 26 states have introduced “right to try” legislation. Here, researchers and patient advocacy groups explain what conditions these medications affect, their risks and benefits, how to qualify and get access, and how to advocate for a more effective drug approval process.

Documenting Dementia

When Orange is the New Black star Connie Shulman’s good friend and fellow actor Laury Sacks started losing her memory and ability to talk in her late 40s, Shulman and filmmaker Pamela Hogan thought filming Laury might help her remember things. Six months into the project, Laury was diagnosed with frontotemporal dementia. Soon after, she entered an assisted living facility. The filmmakers hope their documentary raises awareness of—and research funds for—this aggressive disease, which affects mostly younger people. Laury died at age 52. In this article, Shulman talks about her friendship with Laury and what she learned about this devastating disease.

Anger Management

Many neurologic conditions affect mood and behavior, turning previously sweet and agreeable people into aggressive, stubborn, and difficult patients. Medications can help with these mood disorders, but sometimes they just make things worse. Here, physicians, social workers, and caregivers share information about medication and other helpful strategies, including how to tell when you or a loved one need professional help.

Resource Central
HELP FOR ALL NEUROLOGIC DISORDERS

American Academy of Neurology Web site
aan.com/patients
1-800-879-1960

CaringBridge® (free, personalized Web sites to support your health journey)
Caringbridge.org
651-452-7940

National Institute of Neurological Disorders and Stroke (NINDS)
ninds.nih.gov

NINDS Clinical Trial Finder
http://www.ninds.nih.gov/disorders/
clinicaltrials_us.htm

Well Spouse Association
wellspouse.org
1-800-838-0879

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The Basics

Neurology Now Basics provide key information on individual neurologic conditions, including what causes each condition, how common it is, how it is diagnosed and treated, and what research is being conducted.

Editor-in-Chief:
Orly Avitzur, MD, MBA, FAAN
New York Medical College

ISSN: 1553-3271

Online ISSN: 1553-328X

Frequency: 6 issues a year

Find a Neurologist in Your Area

http://patients.aan.com/findaneurologist

Neurology News
NEUROLOGY NOW
Read the most current news on neurologic diseases here! And we want your input. Leave your comments at the end of each article.

Latest Entry: 5/28/2015 Kids with Lingering Concussion Symptoms May Struggle in School

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Click here to find more content from the articles appearing in the latest issue of Neurology Now.

Latest Entry: 4/8/2015 What We Know About Medical Marijuana

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Speak Up
Editor
The Speak Up blog features essays and poetry by people living with neurologic disorders and their caregivers. Readers can also find letters to the editor.

Latest Entry: 3/18/2015 Choosing Gratitude



For info on symptoms, diagnosis, & treatment of Pompe disease, see the Pompe Disease Awareness Resource.