Neurology Now. 8(2):29-33, April/May 2012.
An estimated 6,000 to 7,000 rare diseases—many of them neurologic—collectively impact nearly 25 million Americans. People with rare diseases often face greater difficulties than people with common diseases in locating experts, receiving an accurate diagnosis, and finding treatment options. Here, we explore the ways that people with rare diseases are pushing for more research and better treatments.