Amyotrophic Lateral Sclerosis

Created:   2/8/2012
Contains:  52 items
This collection contains articles on amyotrophic lateral sclerosis, also known as ALS or Lou Gehrig's disease. Sign up to receive an alert by email or RSS when new articles, podcasts, video, blog posts, and letters to the editor on ALS are added to this collection: Go to the "Collection Alerts" box in the right-hand column.

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Must-Have ALS Resource: A new book written by an ALS specialist and a lawyer whose mother had the disease offers practical and compassionate advice.

Bolster, Mary

Neurology Now. 13(3):9, June/July 2017.

Resources: A new book about living with amyotrophic lateral sclerosis is a must-read for people with the disease and their caregivers.

Cukes for a Cure: After a diagnosis of ALS, photographer Arthur Cohen turned the cucumbers in his backyard into a successful pickle business that raises money for research.

Watts, Sarah

Neurology Now. 12(6):10, December/January 2016.

This Way In: Find out why Arthur Cohen sells pickles to raise money for ALS research.

Follow the Money: The Ice Bucket Challenge raised big bucks on social media. Now, the ALS Association tells us where that cold, hard cash is going.

Shaw, Gina

Neurology Now. 11(1):26-33, February/March 2015.

The ALS Association tells us where the cold, hard cash from the Ice Bucket Challenge is going.

This Way In: Caucusing for CuresA legislator's personal history fuels his commitment to raising funds for medical innovation.

Shaw, Gina

Neurology Now. 11(1):12-13, February/March 2015.

This Way In: Why one legislator is on a mission to raise funds for medical innovation.

Globe Trotters on Four Wheels: For these intrepid travelers with neurologic conditions, a wheelchair is just another way to hit the road.

Avitzur, Orly

Neurology Now. 10(5):30-38, October/November 2014.

Michael Glen, Carole Zoom, and Justin Skeesuck—three intrepid travelers with neurologic conditions—share their hard-earned wisdom on how travelers with neurologic disabilities can see the world in total safety and comfort.

Beating the Odds: I experienced the first symptoms of ALS in 1996. Here's how I've added life to my years.

Wolf, Catherine G.

Neurology Now. 10(2):41-43, April/May 2014.

Catherine G. Wolf lives a full life with amyotrophic lateral sclerosis by pursing her passions: writing and advocacy.

What We Gain by Giving Up

Smolev, Richard

Neurology Now. 10(1):40, February/March 2014.

How Richard Smolev, a lawyer turned novelist with amyotrophic lateral sclerosis (ALS), learned to take comfort in the compassion of others.

Actor and Activist Blair Underwood, raising awareness of HIV/AIDS.

Gora, Susannah

Neurology Now. 9(1):12-18, February-March 2013.

Award-winning actor Blair Underwood believes in using celebrity to create positive change in the world—and as an HIV/AIDS activist for nearly 25 years, he has been doing just that. Here, we focus on Underwood's work as an advocate, as well as the neurologic complications of HIV/AIDS.

A Flood of Emotions: Treating the uncontrollable crying and laughing of pseudobulbar affect.

Gordon, Debra

Neurology Now. 8(1):26-29, February-march 2012.

Many individuals with pseudobulbar affect—characterized by prolonged and unexplained episodes of laughing and crying—live in constant fear of their next outburst. Now, with one medication already approved by the FDA and other treatments in the works, patients may finally be able to regain control of their emotions and their lives.

Attitude Determines Altitude: Amytrophic lateral sclerosis can't take away my father's spirit.

Shanton, Steve

Neurology Now. 7(5):80, October-November 2011.

Steve Shanton turned to advocacy after his father was diagnosed with amyotrophic lateral sclerosis (ALS).

Join the Cause: How to become an advocate for yourself and others.

Wolf, Catherine G.

Neurology Now. 7(5):32-36, October-November 2011.

Being diagnosed with a neurologic disorder sometimes causes people to withdraw from the world, but the men and women we profile here have learned to use their illness as a call to action. How? By becoming patient- and caregiver-advocates. Cathy Wolf speaks from personal experience about how and why she took the big step—from ALS patient to advocate—and offers advice for advocates-in-training.

Going Mobile: Smartphones and other mobile devices can provide real-time information and assistance for people with neurologic problems

Paturel, Amy

Neurology Now. 7(2):23-26, April-May 2011.

People with epilepsy, multiple sclerosis, seizures from tuberous sclerosis, and other neurologic diseases are using cell phones with Web access to upload information on symptoms to their doctors in real time. Mobile devices can even serve as prosthetics for cognitive impairments and help researchers carry out clinical trials. Will digital devices revolutionize the doctor-patient relationship?

The CEO of ALS Research

TALAN, JAMIE

Neurology Now. 6(5):30,32-34, September-October 2010.

The CEO of ALS Research: Fitness mogul Augie Nieto is applying his passion and business acumen to the fight against amyotrophic lateral sclerosis (ALS), which he was diagnosed with in 2004. His nonprofit group, Augie's Quest, has now raised more than $23 million-and every dime is applied to finding a cure for ALS.



Creator: Jamie Talan
Duration: 6:57
Neurology Now 
Merit Cudkowicz, MD, of Harvard Medical School, discusses the results of a phase 2 study—a reduction in functional decline and a significant drop in the death rate in those on the highest dose of the drug, dexpramipexole. See the Dec. 15 issue of Neurology Today for the full-text article: http://bit.ly/uqFbG7.
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