Resource Central

 

ALZHEIMER'S DISEASE

 

Alzheimer's Association
alz.org
1-800-272-3900

 

Alzheimer's Disease Education and Referral Center
alzheimers.org
1-800-438-4380

 

Alzheimer's Foundation of America
alzfdn.org
1-866-232-8484

 

Association for Frontotemporal Degeneration
theaftd.org
1-866-507-7222


ATAXIA


National Ataxia Foundation
ataxia.org
763-553-0020

 

AUTISM

 

Autism Society of America
autism-society.org
1-800-3AUTISM (1-800-328-8476)

 

Autism Speaks, Inc.
autismspeaks.org
212-252-8584

 

Global and Regional Asperger Syndrome Partnership
grasp.org
1-888-474-7277

 

BRAIN TUMOR

 

American Brain Tumor Association
abta.org
773-577-8750

Brain Tumor Foundation
braintumorfoundation.org
212-265-2401

Children's Brain Tumor Foundation
cbtf.org
1-866-228-4673

National Brain Tumor Society
braintumor.org
617-924-9997

Voices Against Brain Cancer
voicesagainstbraincancer.org
1-866-526-9255
212-340-1340

 

CEREBRAL PALSY

 

United Cerebral Palsy
ucp.org
1-800-872-5827

 

CHIARI MALFORMATION AND SYRINGOMYELIA

American Syringomyelia and Chiari Alliance Project
asap.org
1-903-236-7079
1-800-ASAP-282 (272-7282)

Chiari and Syringomyelia Foundation
csfinfo.org
1-718-966-2593


DEPRESSION AND MENTAL DISORDERS

 

National Alliance on Mental Illness
nami.org
1-800-950-NAMI (6264)

 

DYSAUTONOMIA

 

Dysautonomia International
dysautonomiainternational.org

DYSPHONIA


National Spasmodic Dysphonia Association
800-795-6732 
www.dysphonia.org


DYSTONIA

 

American Dystonia Society
dystonia.us
310-237-5478

 

Dystonia Foundation
www.dystonia-foundation.org 
1-800-377-DYST (1-800-377-3978)


Spasmodic Torticollis
spasmodictorticollis.org
1-888-445-4588

 

ENCEPHALITIS & MENINGITIS

 

Encephalitis Global
encephalitisglobal.org

 

National Meningitis Association
nmaus.org
866-FONE-NMA (366-3662)

 

EPILEPSY AND SEIZURES

 

Citizens United for Research in Epilepsy (CURE)
CUREepilepsy.org
312-255-1801

 

Epilepsy Foundation
epilepsyfoundation.org
1-800-332-1000

 

Epilepsy Therapy Project
epilepsy.com/epilepsy_therapy_project
540-687-8077

 

HEADACHE/MIGRAINE

 

American Headache Society Committee for Headache Education (ACHE)
achenet.org
856-423-0043

 

Migraine Research Foundation
migraineresearchfoundation.org
212-249-5402

 

National Headache Foundation
headaches.org
888-NHF-5552 (888-643-5552)

 

HUNTINGTON'S DISEASE

 

Hereditary Disease Foundation
hdfoundation.org
212-928-2121

 

Huntington's Disease Society of America
hdsa.org
1-800-345-HDSA (1-800-345-4372)

 

HYDROCEPHALUS

 

Hydrocephalus Association
hydroassoc.org
1-888-598-3789

 

National Hydrocephalus Foundation
nhfonline.org
1-888-857-3434

 

MULTIPLE SCLEROSIS

 

MSFriends
msfriends.org
1-800-344-4867 

 

MSWorld
msworld.org

 

Multiple Sclerosis Association of America
msassociation.org
1-800-532-7667

 

Multiple Sclerosis Foundation
msfocus.org
1-800-225-6495

 

Myelin Repair Foundation
myelinrepair.org
408-871-2410

 

National Multiple Sclerosis Society
nationalmssociety.org
1-800-FIGHT-MS (1-800-344-4867)

 

MYASTHENIA GRAVIS

 

Myasthenia Gravis Foundation of America
myasthenia.org
1-800-541-5454

 

Myasthenia Gravis Foundation of Illinois
myastheniagravis.org
1-800-888-6208

 

Myasthenia Gravis Foundation of California
myasthenia-ca.org or info@myasthenia-ca.org
323-887-0056

 

NEUROMUSCULAR DISEASES

 

ALS Association
alsa.org
1-800-782-4747

 

Charcot-Marie-Tooth Association
charcot-marie-tooth.org
610-499-9264
1-800-606-CMTA (2682)

 

Kennedy's Disease Association
kennedysdisease.org
559-658-5950

 

Moebius Syndrome Foundation
moebiussyndrome.com
1-660-834-3406

 

Muscular Dystrophy Association
mda.org
1-800-FIGHT-MD (1-800-344-4863)

 

Neuropathy Association
neuropathy.org
212-692-0662

 

Spastic Paraplegia Foundation, Inc.
sp-foundation.org
1-877-773-4483


PAIN

 

American Chronic Pain Association
theacpa.org
1-800-533-3231

 

Hereditary Neuropathy Foundation
hnf-cure.org
212-722-8396; 855-HELPCMT (435-7268)

 

PARKINSON'S DISEASE & MOVEMENT DISORDERS

 

American Parkinson Disease Association
apdaparkinson.org
1-800-223-2732

 

Foundation for PSP, CBD and Related Brain Diseases
curepsp.org
1-800-457-4777

 

International Essential Tremor Foundation
essentialtremor.org
1-888-387-3667

 

The Michael J. Fox Foundation for Parkinson's Research
michaeljfox.org
1-800-708-7644

 

Lewy Body Dementia Association
lbda.org
404-935-6444

 

National Parkinson Foundation
parkinson.org
1-800-327-4545

 

Parkinson's Disease Foundation
pdf.org
1-800-457-6676

 

The Parkinson's Institute and Clinical Center
thepi.org
1-800-655-2273

 

Tremor Action Network
tremoraction.org
510-681-6565

WE MOVE
wemove.org

 

POST-POLIO SYNDROME

 

Post-Polio Health International
314-534-0475

post-polio.org

 

RARE DISEASES

 

Adult Polyglucosan Body Disease Research Foundation 
apbdrf.org
1-646-580-5610

 

The Children's Rare Disease Network
crdnetwork.org
1-949-248-7273

The National Institutes of Health Office of Rare Diseases Research
rarediseases.info.nih.gov
1-301-402-4336

National Organization for Rare Disorders
rarediseases.org
1-203-744-0100
1-800-999-NORD (6673)

 

SLEEP DISORDERS

 

National Sleep Foundation
sleepfoundation.org
703-243-1697

 

STROKE

 

American Stroke Association: A Division of American Heart Association
strokeassociation.org
1-888-4STROKE (478-7653)

 

National Stroke Association
stroke.org
1-800-STROKES (787-6537)

 

TOURETTE SYNDROME

 

Tourette Syndrome Association
tsa-usa.org
718-224-2999

 

TRANSVERSE MYELITIS

 

Transverse Myelitis Network
transversemyelitis.ning.com

 

Transverse Myelitis Association
Myelitis.org

1-855-380-3330 

 

TRAUMATIC BRAIN INJURY

 

Brain Injury Association of America
biausa.org
1-800-444-6443


TRIGEMINAL NEURALGIA

 

The Facial Pain Association
fpa-support.org
1-800-923-3608

 

Living with TN
livingwithtn.org