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Skip Navigation LinksHome > February-March 2013 - Volume 9 - Issue 1 > Assistance Directory: Where to go for more information on th...
Neurology Now:
doi: 10.1097/01.NNN.0000427289.43659.76
Departments: Resource Central

Assistance Directory: Where to go for more information on the topics discussed in this issue of Neurology Now and for a directory of patient advocacy organizations

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For a full listing of patient organizations, go to neurologynow.com

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HELP FOR ALL NEUROLOGIC DISORDERS

American Academy of Neurology Web site

aan.com/patients

1-800-879-1960

American Brain Foundation

CureBrainDisease.org

1-800-879-1960

CaringBridge®

(Free, personalized Web sites to support your health journey)

Caringbridge.org

651-452-7940

National Institute of Neurological Disorders and Stroke

ninds.nih.gov

Well Spouse Association

wellspouse.org

1-800-838-0879

ALZHEIMER'S DISEASE

Alzheimer's Association

alz.org

1-800-272-3900

Alzheimer's Disease Education and Referral Center

nia.nih.gov/alzheimers

1-800-438-4380

Alzheimer's Foundation of America

alzfdn.org

1-866-232-8484

Association for Frontotemporal Degeneration

theaftd.org

1-866-507-7222

Cognitive Dynamics

cognitivedynamics.org

205-759-1585

ATAXIA

National Ataxia Foundation

ataxia.org

763-553-0020

AUTISM

Autism Society of America

autism-society.org

1-800-3AUTISM (1-800-328-8476)

Autism Speaks, Inc.

autismspeaks.org

212-252-8584

Global and Regional Asperger Syndrome Partnership

grasp.org

1-888-474-7277

BRAIN TUMOR

American Brain Tumor Association

abta.org

1-800-934-2873

Brain Tumor Foundation

braintumorfoundation.org

212-265-2401

Children's Brain Tumor Foundation

cbtf.org

1-866-228-4673

National Brain Tumor Society

braintumor.org

1-800-934-2873

CEREBRAL PALSY

United Cerebral Palsy ucp.org

1-800-872-5827

CHIARI MALFORMATION AND SYRINGOMYELIA

American Syringomyelia and Chiari Alliance Project

asap.org

1-903-236-7079

1-800-ASAP-282 (272-7282)

Chiari and Syringomyelia Foundation

csfinfo.org

1-718-966-2593

DEPRESSION AND MENTAL DISORDERS

National Alliance on Mental Illness

nami.org

1-800-950-NAMI (6264)

DYSTONIA

American Dystonia Society

dystonia.us

310-237-5478

Dystonia Foundation

dystonia-foundation.org

1-800-377-DYST (1-800-377-3978)

Spasmodic Torticollis

spasmodictorticollis.org

1-888-445-4588

EPILEPSY AND SEIZURES

Citizens United for Research in Epilepsy (CURE)

CUREepilepsy.org

312-255-1801

Epilepsy Foundation

epilepsyfoundation.org

1-800-332-1000

Epilepsy Therapy Project

epilepsy.com/epilepsy_therapy_project

540-687-8077

Living Well With Epilepsy

LivingWellWithEpilepsy.com

SeizureTracker

SeizureTracker.com

info@seizuretracker.com

HEADACHE/MIGRAINE

American Headache Society Committee for Headache Education (ACHE)

achenet.org

856-423-0043

Migraine Research Foundation

migraineresearchfoundation.org

212-249-5402

National Headache Foundation

headaches.org

888-NHF-5552 (888-643-5552)

HUNTINGTON'S DISEASE

Hereditary Disease Foundation

hdfoundation.org

212-928-2121

Huntington's Disease Society of America

hdsa.org

1-800-345-HDSA (1-800-345-4372)

Huntington's Disease Youth Organization

hdyo.org

HYDROCEPHALUS

Hydrocephalus Association

hydroassoc.org

1-888-598-3789

National Hydrocephalus Foundation

nhfonline.org

1-888-857-3434

INFECTIOUS DISEASE

Encephalitis Global

encephalitisglobal.org

National Meningitis Association

nmaus.org

866-FONE-NMA (366-3662)

MULTIPLE SCLEROSIS

MSFriends

msfriends.org

1-877-MSFRIENDS

MSWorld

msworld.org

Multiple Sclerosis Association of America

msassociation.org

1-800-532-7667

Multiple Sclerosis Foundation

msfocus.org

1-800-225-6495

National Multiple Sclerosis Society

nationalmssociety.org

1-800-FIGHT-MS (1-800-344-4867)

MYASTHENIA GRAVIS

Myasthenia Gravis Foundation of Greater NY Inc.

Myasthenia Gravis Alliance

MGdirect.org

1-800-643-0808

Myasthenia Gravis Foundation of America

myasthenia.org

1-800-541-5454

NEUROMUSCULAR DISEASES

ALS Association

alsa.org

1-800-782-4747

Charcot-Marie-Tooth Association

charcot-marie-tooth.org

610-499-9264

1-800-606-CMTA (2682)

Hereditary Neuropathy Foundation

hnf-cure.org

212-722-8396; 855-HELPCMT (435-7268)

Kennedy's Disease Association

kennedysdisease.org

559-658-5950

Moebius Syndrome Foundation

moebiussyndrome.com

1-660-834-3406

Muscular Dystrophy Association

mda.org

1-800-FIGHT-MD (1-800-344-4863)

Neuropathy Association

neuropathy.org

212-692-0662

Spastic Paraplegia Foundation, Inc.

sp-foundation.org

1-877-773-4483

PAIN

American Pain Foundation

painfoundation.org 1-888-615-PAIN (7246)

American Chronic Pain Association

theacpa.org

1-800-533-3231

PARKINSON'S DISEASE & MOVEMENT DISORDERS

American Parkinson Disease Association

apdaparkinson.org

1-800-223-2732

Foundation for PSP, CBD and Related Brain Diseases

curepsp.org

1-800-457-4777

International Essential Tremor Foundation

essentialtremor.org

1-888-387-3667

The Michael J. Fox Foundation for Parkinson's Research

michaeljfox.org

1-800-708-7644

Lewy Body Dementia Association

lbda.org

404-935-6444

National Parkinson Foundation

parkinson.org

1-800-327-4545

Parkinson's Disease Foundation

pdf.org

1-800-457-6676

The Parkinson's Institute and Clinical Center

thepi.org

1-800-655-2273

Tremor Action Network

tremoraction.org

510-681-6565

WE MOVE

wemove.org

212-875-8312

RARE DISEASES

The Children's Rare Disease Network

crdnetwork.org

1-949-248-7273

The National Institutes of Health Office of Rare Diseases Research

rarediseases.info.nih.gov

1-301-402-4336

National Organization for Rare Disorders

rarediseases.org

1-203-744-0100

1-800-999-NORD (6673)

SLEEP

National Sleep Foundation

sleepfoundation.org

703-243-1697

STROKE

American Stroke Association

strokeassociation.org

1-888-4STROKE (478-7653)

National Aphasia Association

aphasia.org

1-800-922-4622

National Stroke Association

stroke.org

1-800-STROKES (787-6537)

TOURETTE SYNDROME

Tourette Syndrome Association

tsa-usa.org

718-224-2999

TRANSVERSE MYELITIS

International Disability Coalition

disabilitycoalition.org

Transverse Myelitis Network

transversemyelitis.ning.com

Transverse Myelitis Association

Myelitis.org

614-766-1806

TRAUMA

Brain Injury Association of America

biausa.org

1-800-444-6443

Brain Trauma Foundation

braintrauma.org

1-212-772-0608

TRIGEMINAL NEURALGIA

The Facial Pain Association

fpa-support.org

1-800-923-3608

Living with TN

livingwithtn.org

©2013 American Academy of Neurology

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