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Neurology Now:
doi: 10.1097/01.NNN.0000421664.19038.54
Departments: Resource Central

Assistance Directory: Where to go for more information on the topics discussed in this issue of Neurology Now and for a directory of patient advocacy organizations.

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For a full listing of patient organizations, go to neurologynow.com

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HELP FOR ALL NEUROLOGIC DISORDERS

American Academy of Neurology Web site aan.com/patients 1-800-879-1960

American Brain Foundation CureBrainDisease.org 1-800-879-1960

CaringBridge® (Free, personalized Web sites to support your health journey) Caringbridge.org 651-452-7940

National Institute of Neurological Disorders and Stroke ninds.nih.gov

Well Spouse Association wellspouse.org 1-800-838-0879

ALZHEIMER'S DISEASE

Alzheimer's Association alz.org 1-800-272-3900

Alzheimer's Disease Education and Referral Center alzheimers.org 1-800-438-4380

Alzheimer's Foundation of America alzfdn.org 1-866-232-8484

Association for Frontotemporal Degeneration theaftd.org 1-866-507-7222

Cognitive Dynamics cognitivedynamics.org 205-759-1585

ATAXIA

National Ataxia Foundation ataxia.org 763-553-0020

AUTISM

Autism Society of America autism-society.org 1-800-3AUTISM (1-800-328-8476)

Autism Speaks, Inc. autismspeaks.org 212-252-8584

Global and Regional Asperger Syndrome Partnership grasp.org 1-888-474-7277

BRAIN TUMOR

American Brain Tumor Association abta.org 1-800-934-2873

National Brain Tumor Society braintumor.org 1-800-934-2873

CHIARI MALFORMATION AND SYRINGOMYELIA

American Syringomyelia and Chiari Alliance Project asap.org 1-903-236-7079 1-800-ASAP-282 (272-7282)

Chiari and Syringomyelia Foundation csfinfo.org 1-718-966-2593

DYSTONIA

American Dystonia Society 310-237-5478 dystonia.us

Dystonia Foundation dystonia-foundation.org 1-800-377-DYST (1-800-377-3978)

Spasmodic Torticollis spasmodictorticollis.org 1-888-445-4588

EPILEPSY AND SEIZURES

Citizens United for Research in Epilepsy (CURE) CUREepilepsy.org 312-255-1801

Epilepsy Foundation epilepsyfoundation.org 1-800-332-1000

Epilepsy Therapy Project epilepsy.com/epilepsy_therapy_project 540-687-8077

SeizureTracker SeizureTracker.com, info@seizuretracker.com

HEADACHE/MIGRAINE

American Headache Society Committee for Headache Education (ACHE) achenet.org 856-423-0043

Migraine Research Foundation migraineresearchfoundation.org 212-249-5402

National Headache Foundation headaches.org 888-NHF-5552 (888-643-5552)

HUNTINGTON'S DISEASE

Hereditary Disease Foundation hdfoundation.org 212-928-2121

Huntington's Disease Society of America hdsa.org 1-800-345-HDSA (1-800-345-4372)

Huntington's Disease Youth Organization hdyo.org

HYDROCEPHALUS

Hydrocephalus Association hydroassoc.org 1-888-598-3789

INFECTIOUS DISEASE

Encephalitis Global encephalitisglobal.org

MULTIPLE SCLEROSIS

MSFriends msfriends.org 1-877-MSFRIENDS

MSWorld msworld.org

Multiple Sclerosis Association of America msassociation.org; 1-800-532-7667

Multiple Sclerosis Foundation msfocus.org 1-800-225-6495

National Multiple Sclerosis Society nationalmssociety.org 1-800-FIGHT-MS (1-800-344-4867)

MYASTHENIA GRAVIS

Myasthenia Gravis Alliance MGdirect.org 1-800-643-0808

Myasthenia Gravis Foundation of America myasthenia.org 1-800-541-5454

NEUROMUSCULAR DISEASES

ALS Association alsa.org 1-800-782-4747

Charcot-Marie-Tooth Association charcot-marie-tooth.org 610-499-9264, 1-800-606-CMTA (2682)

Kennedy's Disease Association kennedysdisease.org 559-658-5950

Moebius Syndrome Foundation moebiussyndrome.com 1-660-834-3406

Muscular Dystrophy Association mda.org 1-800-FIGHT-MD (1-800-344-4863)

Neuropathy Association neuropathy.org 212-692-0662

Spastic Paraplegia Foundation, Inc. sp-foundation.org 1-877-773-4483

PAIN

American Pain Foundation painfoundation.org 1-888-615-PAIN (7246)

PARKINSON'S DISEASE & MOVEMENT DISORDERS

American Parkinson Disease Association apdaparkinson.org 1-800-223-2732

Foundation for PSP, CBD and Related Brain Diseases curepsp.org 1-800-457-4777

International Essential Tremor Foundation essentialtremor.org 1-888-387-3667

The Michael J. Fox Foundation for Parkinson's Research michaeljfox.org 1-800-708-7644

Lewy Body Dementia Association lbda.org 404-935-6444

National Parkinson Foundation parkinson.org 1-800-327-4545

Parkinson's Disease Foundation pdf.org 1-800-457-6676

Tremor Action Network tremoraction.org 510-681-6565

WE MOVE wemove.org 212-875-8312

RARE DISEASES

The Children's Rare Disease Network crdnetwork.org 1-949-248-7273

The National Institutes of Health Office of Rare Diseases Research rarediseases.info.nih.gov 1-301-402-4336

National Organization for Rare Disorders rarediseases.org 1-203-744-0100, 1-800-999-NORD (6673)

SLEEP

National Sleep Foundation sleepfoundation.org 703-243-1697

STROKE

American Stroke Association strokeassociation.org 1-888-4STROKE (478-7653)

National Aphasia Association aphasia.org 1-800-922-4622

National Stroke Association stroke.org 1-800-STROKES (787-6537)

TOURETTE SYNDROME

Tourette Syndrome Association tsa-usa.org 718-224-2999

TRANSVERSE MYELITIS

International Disability Coalition disabilitycoalition.org

Transverse Myelitis Network transversemyelitis.ning.com

Transverse Myelitis Association Myelitis.org 614-766-1806

TRAUMA

Brain Injury Association of America biausa.org 1-800-444-6443

Brain Trauma Foundation braintrauma.org 1-212-772-0608

TRIGEMINAL NEURALGIA

The Facial Pain Association fpa-support.org 1-800-923-3608

Living with TN livingwithtn.org

©2012 American Academy of Neurology

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