Golden, Janet M.
Myasthenia Gravis Foundation of America, Inc. 1-800-541-5454, myasthenia.org
I am contacting you to suggest a story regarding Myasthenia Gravis Awareness Month in June. Myasthenia gravis (MG) is an under-diagnosed and relatively unknown autoimmune neuromuscular disease. It affects people of every age, race, and gender and can cause slurred speech, double vision, drooping eyelids, weakness in the arms and legs, and difficulty breathing, chewing, and swallowing.
The lack of media coverage and public knowledge of this disease permits the suffering of thousands of people each year. A person may endure the symptoms of MG for much of his or her life without answers.
Additionally, our foundation receives heartbreaking calls each year from patients who are left untreated in emergency rooms, patients who are mistaken for being intoxicated, and patients who are ridiculed for taking handicapped spaces because their symptoms are often “invisible” to the average person. Please consider spotlighting this disease in June of this year in coordination with Myasthenia Gravis Awareness Month.
—Janet M. Golden
Myasthenia Gravis Foundation of America, Inc. 1-800-541-5454