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Serdans, Beka RN, MS, NP
Founder, Care4Dystonia, Inc
There need to be a few clarifications regarding “Rem Murray: Home on Ice,” in the Jan/Feb 2008 issue of Neurology Now. It is well known that the “Reaching Your Goals” campaign is funded by Allergan. There is another botulinum toxin—Type B (Myobloc)—that is FDA-approved for cervical dystonia (myobloc.com). They provide financial assistance to those who are immune to botulinum toxin Type A. In addition, many experts feel that deep brain stimulation surgery is becoming the primary treatment for movement disorders. Finally, there are several other dystonia-focused organizations that should be listed as resources:
* Care4Dystonia, Inc: care4dystonia.org
* Dystonia Association of Kentucky: dystoniaassociation.org
* Bachmann-Strauss Dystonia and Parkinson's Foundation: dystonia-parkinsons.org
* National Spasmodic Torticollis Assocation: torticollis.org
* For clinical trials: clinicalconnection.com
Beka Serdans, RN, MS, NP
©2008 American Academy of Neurology
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