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Neurology Now:
doi: 10.1097/01.NNN.0000300617.68347.9a
Department: Resource Central

Avoiding Caregiver Burnout

Stump, Elizabeth

Free Access

Facing a neurological disorder isn't just difficult for the patient. Caregivers can become so involved with looking after for their loved ones that they neglect themselves. These resources help caregivers maintain good health and a positive attitude.

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WEB SITES

Alzheimer's Association:

alz.org

This Web site from one of the top voluntary health organizations for Alzheimer's disease features an online networking community, a guide to locating care, and data on the latest national conferences and scientific studies.

American Parkinson Disease Association:

apdaparkinson.org

A comprehensive source of patient and caregiver information, including news on fundraisers and symposia, physician and services referrals, and educational publications and programs.

Family Caregiver Alliance:

caregiver.org

Check here for fact sheets on neurological disorders (such as Parkinson's, frontotemporal dementia, and traumatic brain injury), community resources for caregivers, research studies and clinical trials, and caregiving legislation—in English, Spanish, and Chinese.

National Stroke Association:

stroke.org

This site is home to a wealth of information for medical professionals, EMS providers, stroke survivors, and caregivers. Browse online for details about stroke symptoms, risk factors, prevention, recovery, and emergency stroke-center locations.

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BOOKS

Alzheimer's Disease

by Paul Dash, M.D. and Nicole Villemarette-Pittman, Ph.D.

This comprehensive resource from the American Academy of Neurology was created for people with Alzheimer's and their caregivers.

The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life(4th Edition) by Nancy Mace and Peter Rabins

The new edition lists resources for diagnosing and evaluating dementia, updated legal and financial information, and more on nursing homes and communal living arrangements.

An Uncertain Inheritance, edited by Nell Casey

A collection of insightful essays about the experiences of caregivers. Writers share their pains and humor while relating sibling rivalry, caring for ill parents, choosing institutional care for a spouse, and more.

Compiled by

Elizabeth Stump

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Assistance Directory

HELP FOR ALL NEUROLOGICAL DISORDERS

American Academy of Neurology Foundation

neurofoundation.org

866-770-7570

The Brain Matters AAN patient website

thebrainmatters.org

National Institute of Neurological Disorders and Stroke

ninds.nih.gov

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ALZHEIMER'S DISEASE

Alzheimer's Association

alz.org

1-800-272-3900

Alzheimer's Disease Education and Referral Center

alzheimers.org

1-800-438-4380

Alzheimer's Foundation of America

alzfdn.org

1-866-232-8484

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ATAXIA

National Ataxia Foundation

ataxia.org

1-763-553-0020

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AUTISM

Autism Society of America

autism-society.org

1-800-3AUTISM (1-800-328-8476)

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CEREBRAL PALSY

United Cerebral Palsy

ucp.org

1-800-872-5827

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Dystonia

Dystonia Foundation

dystonia-foundation.org

1-800-377-DYST (1-800-377-3978)

National Spasmodic Dysphonia Association

dysphonia.org

800-795-6732

Spasmodic Torticollis

spasmodictorticollis.org

1-888-445-4588

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EPILEPSY AND SEIZURES

Epilepsy Foundation

epilepsyfoundation.org

1-800-332-1000

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HEADACHE/MIGRAINE

National Headache Foundation

headaches.org

1-888-NHF-5552 (1-888-643-5552)

American Council for Headache Education

achenet.org 1-856-423-0258

The Migraine and Pain Fund

migraineandpainfund.org

212-249-5402

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HUNTINGTON'S DISEASE

Hereditary Disease Foundation

hdfoundation.org

212-928-2121

Huntington's Disease Society of America

hdsa.org

1-800-345-HDSA (1-800-345-4372)

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MULTIPLE SCLEROSIS

Multiple Sclerosis Association of America

msassociation.org

1-800-532-7667

Multiple Sclerosis Foundation

msfocus.org

1-800-225-6495

National Multiple Sclerosis Society

nationalmssociety.org

1-800-FIGHT-MS (1-800-344-4867)

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MYASTHENIA GRAVIS

Myasthenia Gravis Foundation of America

myasthenia.org

1-800-541-5454

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NEUROMUSCULAR DISEASES

ALS Association

alsa.org

1-800-782-4747

Muscular Dystrophy Association

mda.org

1-800-FIGHT-MD (1-800-344-4863)

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PAIN

American Pain Foundation

painfoundation.org

1-888-615-PAIN (1-888-615-7246)

Neuropathy Association

neuropathy.org

212-692-0662

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PARKINSON'S DISEASE

American Parkinson Disease Association

apdaparkinson.org

1-800-223-2732

Michael J. Fox Foundation for Parkinson's Research

michaeljfox.org

1-800-708-7644

National Parkinson Foundation

parkinson.org

1-800-327-4545

Parkinson's Disease Foundation

pdf.org

1-800-457-6676

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STROKE

American Stroke Association

strokeassociation.org

1-888-4-STROKE (1-800-478-7653)

National Stroke Association

stroke.org

1-800-STROKES (1-800-787-6563)

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TRAUMA

Brain Injury Association of America

biausa.org

1-800-444-6443

Please look for CLINICAL TRIAL OPPORTUNITIES WITHIN THIS SECTION. For a complete listing, visit ninds.nih.gov/disorders/clinicaltrials_us.htm or clinicaltrials.gov.

©2007 American Academy of Neurology

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