I am a myasthenia gravis (MG) patient and am on the Board of Directors of the Metro New York Chapter of the Myasthenia Gravis Foundation of America.
In all the months I have been receiving Neurology Now I have only seen one tiny piece on MG. True, there are probably only 70,000 of us with MG in the U.S., but that's the problem: no one knows what it is. There are a lot of doctors out there who are not familiar with the state of MG today and only know what they learned in medical school—information that could be very old. As a result, patients go misdiagnosed. Treatments have been updated, there is research going on, and there are neurologists who do see many MG patients and are up to speed on current protocol.
So how about an article on MG? Help us out—it's tough to raise awareness and fund-raise when no one can even pronounce the disease you have.
Secretary, Board of Directors, Metro NY Chapter, MGFA