Resource Central

Neurology Now:
doi: 10.1097/01.NNN.0000267373.89183.9b
Department: RESOURCE CENTRAL
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    Treating Early-Stage Alzheimer's Disease

    With more than 4.5 million Americans living with Alzheimer's disease today—a number that's expected to jump to 16 million by the year 2050—chances are that a family member or someone you know will need to be evaluated for possible signs of the disease.

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    The good news is that there are plenty of resources available to provide support for coping with the disease. For more information, visit these websites:

    24/7 Helpline alz.org/we_can_help_24_7_helpline.asp 1-800-272-3900

    One of many services of the Alzheimer's Association, the 24/7 helpline offers roundthe-clock information and support from clinicians on everything from medications and other treatment options to legal, financial, and living-arrangement decisions.

    Eldercare Locator Eldercare.org 1-800-677-116

    A public service of the U.S. Administration on Aging, the Eldercare Locator connects older Americans and their caregivers with sources of information on senior services. The services link those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers.

    Family Caregiver Alliance caregiver.org 1-800-445-8106

    The Family Caregiver Alliance offers support services for those providing longterm care for loved ones with Alzheimer's disease, stroke, traumatic brain injuries, and other debilitating disorders. Its website offers information on public-funded caregiver support programs throughout the U.S., as well as programs funded through the National Family Caregiver Support Program, Aged/Disabled Medicaid waivers, and state-funded programs that either have a caregiver-specific focus, or include a family caregiving component in their service package.

    National Association of Professional Geriatric Care Managers Inc. caremanager.org 1-520-881-8008

    This nonprofit association of professional geratric care managers—which includes gerontologists, nurses, social workers, or psychologists who specialize in issues related to aging and elder care—works privately with older adults and their families to create a plan of care that meets their needs. Among services, the association's website features a geriatric care manager locator.

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    Assistance Directory

    HELP FOR ALL NEUROLOGICAL DISORDERS

    National Institute of Neurological Disorders and Stroke ninds.nih.gov

    “The Brain Matters” AAN Foundation patient website thebrainmatters.org

    American Academy of Neurology Foundation neurofoundation.org

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    ALZHEIMER'S DISEASE

    Alzheimer's Association alz.org 1-800-272-3900

    Alzheimer's Disease Education and Referral Center alzheimers.org 1-800-438-4380

    Alzheimer's Foundation of America alzfdn.org

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    AUTISM

    Autism Society of America autism-society.org 1-800-3AUTISM (1-800-328-8476)

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    EPILEPSY

    Epilepsy Foundation epilepsyfoundation.org 1-800-332-1000

    Sturge-Weber Foundation sturge-weber.com 1-800-627-5482

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    HEADACHE

    National Headache Foundation headaches.org 1-888-NHF-5552 (1-888-643-5552)

    American Council for Headache Education achenet.org 1-856-423-0258

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    Multiple Sclerosis

    National Multiple Sclerosis Society nationalmssociety.org 1-800-FIGHT-MS (1-800-344-4867)

    Multiple Sclerosis Association of America msaa.com 1-800-532-7667

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    NEUROMUSCULAR DISEASES

    ALS Association alsa.org 1-800-782-4747

    Muscular Dystrophy Association mda.org 1-800-FIGHT-MD (1-800-344-4863)

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    PAIN

    American Pain Foundation painfoundation.org 1-888-615-PAIN (1-888-615-7246)

    Neuropathy Association neuropathy.org 212-692-0662

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    PARKINSON'S DISEASE

    National Parkinson Foundation parkinson.org 1-800-327-4545

    Michael J. Fox Foundation for Parkinson's Research michaeljfox.org 1-800-708-7644

    Parkinson's Disease Foundation pdf.org 1-800-457-6676

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    SLEEP DISORDERS

    National Sleep Foundation sleepfoundation.org

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    Stroke

    American Stroke Association strokeassociation.org 1-888-4-STROKE (1-800-478-7653)

    National Stroke Association stroke.org 1-800-STROKES (1-800-787-6563)

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    TRAUMA

    Brain Injury Association of America biausa.org 1-800-444-6443

    National Spinal Cord Injury Association spinalcord.org 1-800-962-9629

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    Dance/Movement Therapy

    Dance therapy, also referred to as movement therapy, uses movement and music to treat social, emotional, cognitive, and physical problems. Practiced in a variety of settings—from mental health rehabilitation, medical and educational sites, to dance companies and exercise studios—dance therapy has been shown to help with everything from memory enhancement to movement rehabilitation, treating such neurological concerns as Parkinson's disease, autism, dementia, and stroke.

    For more information on the dance therapy concepts covered in our Special Report on page 30, contact the following:

    American Dance Therapy Association

    adta.org

    The American Dance Therapy Association has established standards for dance therapy education, ethics, and practice. The association maintains a registry of dance therapists who meet specific educational and clinical practice standards.

    Mark Morris Dance Company Markmorrisdancegroup.org 718-624-8400 Offers weekly dance classes for people with Parkinson's disease

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    Dance Movement Therapy

    Theory, Research and Practice

    By Helen Payne (Routledge, 2006)

    This easy-to-read book explains the theories, research, and practices that make dance therapy an effective tool for healing both emotional and movement disorders. The book brings together contributions from experts in the field, who share their working methods and techniques for working with people who have dementia, movement disorders, and emotional and developmental disabilities.

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    ©2007 American Academy of Neurology