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Special Events Calendar

APRIL

  • 9–10 MS Bike Tour
  • All are welcome on 150-mile fundraising bike tour. Mid Florida Chapter, National Multiple Sclerosis (MS) Society, Michael Cooper, 2701 Maitland Center Parkway, Suite 100, Maitland, FL 32751, (407) 478-0880. e-mail: michealcooper@flc.nmss.org, www.nationalmsssociety.org/flc
  • 9–10 S.E.E.: Seizures and Epilepsy Education Conference
  • Seminar for people with epilepsy and their families.
  • Epilepsy Foundation of New Jersey Robin Sims, 322 Route 46 West, Suite 220, Parsippany, NJ 07054, (973) 244-0850. e-mail: rsims@efnj.com, www.efnj.com
  • 16 4th Annual Autism Walk andInformational Fair
  • Walk two miles at Vassar College in Poughkeepsie, NY.
  • Hudson Valley Autism Society 18 Jansen Road. Stone Ridge, NY 12484, (845) 473-3000, ext. 377. e-mail: hvalleyautism@aol.com, www.hvasa.net, www.walkforautism.com
  • 16 Parkinson's Unity Walk
  • Fundraising walk through New York City's Central Park.
  • Parkinson's Unity Walk, 633 Third Ave., 27th Floor New York, NY 11017, (866) PUW-WALK, (866) 789-9255. e-mail: info@unitywalk.org, www.unitywalk.org
  • 16–17 MS Bike Tour
  • Fundraising ride from Houston to Austin, TX.
  • Lone Star Chapter, National MS Society 8111 N. Stadium Drive, Suite 100, Houston, TX 77054, (713) 526-8967. e-mail: txh@nmss.org, www.nationalmsssociety.org/txh
  • 16–17 MS Bike Tour
  • 150-mile fundraising tour from Miami to Key Largo.
  • South Florida Chapter, National MS Society 3201 W. Commercial Blvd., Suite 127 Fort Lauderdale, FL 33309(954) 731-4224. e-mail: MS150bike@fls.nmss.org
  • Maine Walk-a-thons for Autism
  • Fundraising walks in Bangor and Biddeford.
  • Autism Society of Maine 72B Main St. Winthrop, ME 04364, (800) 273-5200. e-mail: info@asmonline.org, www.asmonline.org
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  • 28–30 Annual Best in the Northwest Autism Conference
  • Presentations on family, educational, and medical issues.
  • Autism Society of Washington, P.O. Box 111624, Tacoma, WA 98411-1624, (253) 572-5203. e-mail: advocate4autism@cs.com, www.autismsocietyorwa.org.
  • 30 MS Bike Tour
  • 10- to 75-mile fundraising bike tour.
  • Northern California Chapter, National MS Society, 150 Grand Ave. Oakland, CA 94612, (510) 268-0572. e-mail: info:msconnection.org, www.nationalmsssociety.org/can
  • 30–May 3 Annual Alzheimer's Association Public Policy Forum
  • Training for advocacy on the federal, state, or local level.
  • Alzheimer's Assosication, Public Policy Office, Washington, D.C. 13–19 F St. NW, (202) 393-7737. e-mail: Diane.Blake@alz.org, www.alz.org/publicpolicyforum/05/
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MAY

  • 1 New York Metro Area HDSA Family Education Day
  • Education workshops on Huntington's disease.
  • Huntington's Disease Society of America, 158 West 29th St., 7th Fl. New York, NY 10001-5300, (212) 242-1968, ext. 11, www.hdsa.org
  • 7 Rocky Mountain Regional Golf Tournament
  • Golf fundraiser for Huntington's disease.
  • Jackie Herbst, Rocky Mountain Chapter, Huntington Disease Society of America, 6545 West 44th Ave. No. 1, Wheat Ridge, CO 80033, (303) 837-9937. www.hdsa.org
  • 7 MS Bike Tour
  • 30- or 60-mile fundraising bike tours.
  • Minnesota Chapter, National MS Society. 200 12th Ave. S. Minneapolis, MN 55415, (612) 335-7900. e-mail: tcAANon@mssociety.org, www.ms150.com
  • 14 MS Bike Tour
  • Fundraising bike routes through Martha's Vineyard.
  • Central New England Chapter, National MS Society, 101 First Ave., Suite 6 Waltham, MA 02451, (781) 890-4990. e-mail: liz.strawn@man.nmss.org, www.msnewengland.org
  • 14 Annual Convention on Huntington's Disease
  • Educational programs for patients, families, and caregivers.
  • North California Chapter, Huntington's Disease, Society of America, 3940 Industrial Blvd., Suite 100-D, West Sacramento, CA 95691, (650) 969-0594. www.hdsa.org
  • 15 2nd Annual Tee'd Off for HD Golf Tournament
  • Golf fundraiser for Huntington's disease.
  • Terrie Pope, Eagle Hill Golf Club, Little Rock, AR, (501) 837-4913. e-mail: arpumper@aol.com www.
  • 14–15 MS Bike Tour
  • 150–mile fundraising tour from Texas to Oklahoma.
  • Lone Star Chapter, North Texas Region, National MS Society, 2105 Luna Road, Suite 390 Dallas, TX 75006, (214) 373-1400. www.ms150.org
  • 21 The Empowerment Summit
  • Epilepsy educational programs.
  • Epilepsy Foundation of Arizona, P.O. Box 25084 Phoenix, AZ 85002-5084, (888) 768-2690. www.epilepsyfoundation.org/arizona
  • 21–22 MS Bike Tour
  • 30- to 150-mile fundraising tours.
  • National Capital Chapter, National MS Society, 2021 K St. N.W., Suite 715 Washington, D.C. 20006, (202) 296-5363. e-mail: msinfo@MsandYou.org, www.MsandYou.org
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JUNE

  • 3–5 MS Challenge Walk
  • 50-mile fundraising walks in Kansas and Missouri.
  • Mid-America Chapter, National MS Society, Kay Julian, P.O. Box 2292 Mission, KS 66201, (913) 432-3926, (800) FIGHT-MS. e-mail: info@nmsskc.org, www.msmidamerica.org
  • 3–5 MS Challenge Walk
  • 50-mile fundraising walks in North Carolina.
  • North Carolina, National MS Society, 2211 West Meadowview Road, Suite 30, Greensboro, NC 27407, (336) 299-4136, (800) FIGHT-MS. e-mail: ncc@nmss.org, www.nationalmssociety.org/ncc
  • 4 MS Mountain Bike Challenge
  • 10- to 30-mile fundraising bike tours.
  • Greater Washington Chapter, National MS Society, 192 Nickerson St., Suite, 100 Seattle, WA 98109, (206) 284-4254, ext. 235. e-mail: Rachael@nmss.was.org, www.nationalmssociety.org/was
  • 10–12 MS Bike Tour
  • Camp and bike fundraiser.
  • Minnesota Chapter, National MS Society, 200 12th Ave. S. Minneapolis, MN 55415, (612) 335-7900. e-mail: tcAANon@mssociety.org, www.ms150.com
  • 11–12 MS Bike Tour
  • 150-mile fundraising bike tour along Lake Erie.
  • Allegheny District Chapter, National MS Society, 1040 Fifth St. Pittsburgh, PA 15219, (412) 261-6347. e-mail pax@nmss.org, www.nmss-pgh.org
  • 11–12 MS Bike Tour
  • 150-mile ride and luau fundraiser.
  • Blue Ridge Chapter, National MS Society, One Morton Drive, Suite 106, Charlottesville, VA 22903, (434) 971-8010. e-mail: vab@nmss.org, www.nationalmssociety.org/kyw
  • 11–12 MS Bike Tour
  • 150-mile fundraising bike tour.
  • South Dakota Chapter, National MS Society, 3800 W. Technology Circle, Suite 201, Sioux Falls, SD 57106, (605) 336-7017. e-mail: keileen.absher@ndn.mss.org, www.nationalmssociety.org/ndn
  • 11–12 MS Bike Tour
  • Fundraising bike tour through Pennsylvania Dutch Country.
  • Greater Delaware Valley Chapter, National MS Society, 1 Reed St., Suite 200, Philadelphia, PA 19147, (800) 445-BIKE. e-mail: MS150@pae.nmss.org, www.MS150biketour.org
  • 11–12 MS Bike Tour
  • 150- or 200-mile fundraising bike tours.
  • Michigan Chapter, National MS Society, 21311 Civic Center Drive, Southfield, MI 48076, (248) 350-0020. e-mail: info@mig.nmss.org, www.nmssmi.org
  • 24–26 20th Annual HDSA Convention
  • Two-day educational programs in Atlanta, Ga.
  • Huntington's Disease Society of America, 158 W. 29th St., 7th Floor, New York, NY 10001, (800) 345-HDSA. e-mail: hdsainfo@hdsa.org, www.hdsa.org
  • 25–26 MS Bike Tour
  • One- or two-day fundraising bike tours.
  • Greater Illinois Chapter, National MS Society, 910 W. Van Buren, 4th Floor Chicago, IL 60607, (888) 343-1179. e-mail: MS150@ild.nmss.org, www.msillinois.org
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WEB SITES OF INTEREST

Parkinson's Disease:www.PDtrials.org. Web site that helps patients find clinical trials of interest. Sponsored by seven leading Parkinson's disease organizations in collaboration with the National Institute of Disorders and Stroke.

National Family Caregivers Association:www.thefamilycaregiver.org Organization for 50 million Americans who care for a chronically ill, aged, or disabled loved one. Encompasses all diseases, ages, and relationship to address the common needs and concerns of all family caregivers. (800) 896-3650.

BenefitsCheckUp:http://benefitscheckup.org Sponsored by the National Council on Aging, this Web site locates programs for people ages 55 and over offers free, confidential help in finding ways to pay for prescription drugs, health care, utilities, and other services.

Children's Tumor Foundation (formerly National Neurofibromatosis Foundation): www.ctf.org. Supports research on treatments and cures for neurofibromatosis (NF) types 1 and 2 and related disorders. Offers programs for persons with NF, their families; and caregivers.

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GOOD READS

Amyotrophic Lateral Sclerosis: An AAN Press Quality of Life Guide (American Academy of Neurology Press, $22.95) ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in enhancing the quality of life for people with ALS. This comprehensive book, written by three medical experts who manage one of the top ALS centers in the world, is part of the AAN book series. Available from the AAN bookstore (www.aan.com, select Academy Store) and from amazon.com, barnesandnoble.com, and most major bookstore chains.

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Migraines and Other Headaches (American Academy of Neurology Press, $19.95) This book, part of the American Academy of Neurology's patient education book series, is a comprehensive guide to dealing with migraine and other headaches. Headache is the most common reason why people visit a neurologist. Medications, preventative strategies, and behavioral treatments are discussed. Sinus headache, disorders of the neck, post-traumatic headache, and facial and non-headache illnesses that accompany headache are also covered. Available from the AAN bookstore (www.aan.com, select Academy Store) and from amazon.com, barnesandnoble.com, and most major bookstore chains.

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Blindsided: Lifting a Life Above Illness: A Reluctant Memoir (HarperCollins, $23.95) Richard Cohen was an Emmy award-winning TV producer with a beautiful wife, TV talk show host Meredith Viera. But he was diagnosed at 25 with multiple sclerosis. Nevertheless, he built a career, raised three children, and–when he was dealt a second blow, colon cancer–weathered it with the characteristic grit and honesty he displays in this book which shows how to celebrate life despite the effects of a chronic illness.

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His Brother's Keeper (Ecco/HarperCollins, $26.95) Pulitzer Prize-winning author Jonathan Weiner recounts the compelling story of Stephen Haywood, a 29-year-old entrepreneur who gambles on the risky science of gene therapy to try to save his older brother, Jamie, who has ALS. The book was chosen as one of the New York Times 100 Notable Books.

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The Forgetting: Alzheimer's Portrait of an Epidemic (Anchor, $13.95) Now in paperback, David Shenk offers a comprehensive look at the disease. He writes touchingly about others who have had Alzheimer's disease, ranging from Ralph Waldo Emerson to Ronald Reagan. He discusses the search for a cause and the complexities in finding a treatment. The book was also the basis for a PBS documentary; a DVD is available for $24.98 at www.pbs.org.

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Supportive Programs

Pen Pal Programs for People with Migraine and Aphasia

People with migraines who want to share their opinions and experiences about headaches with other headache sufferers can participate in the National Headache Foundation's E-mail Pen Pal Program. If you're interested, visit www.headaches.org.

Those with an interest in aphasia who want a pen pal can find information on that program at www.aphasia.org/NAApenpals.html.

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We Want Your Input

Do you want to share information about resources, events, Web sites, programs, and books of interest to patients with neurological diseases and their caregivers? Submit your items for consideration—with complete contact information, including address, phone numbers, e-mail, and Web sites—to NeurologyNow@lwwny.com or clibov@lwwny.com or send your fax to (646) 674-6500, Attn: Resource Central, Neurology Now.

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WEB SITES OF INTEREST

A more complete listing of special events— including the Challenge Walks and Bike Tours sponsored by the National Multiple Sclerosis Society—are available online at the Neurology Now Web site: www.neurologynow.com

Copyright © 2005, AAN Enterprises, Inc.