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The quality of life of mothers of children with spina bifida

Civilibal, Mahmuta; Suman, Muratb; Elevli, Muratb; Duru, Nilgün Selcukb

Journal of Pediatric Orthopaedics B:
doi: 10.1097/BPB.0000000000000063
Spine
Abstract

Spina bifida (SB) is a common birth defect associated with significant lifelong morbidity. The objective of this study was to assess the quality of life and psychological status of mothers of children with SB. In this study, we included 30 mothers with children with SB and 30 mothers of healthy children. The groups were similar for background variables (child’s age, sex, and number of siblings; mother’s age, marital status; economic status of the families, and presence of health insurance). The 36-item short-form health survey (SF-36), State-Trait Anxiety Inventory (STAI), and the Beck Depression Inventory (BDI) were administered to all mothers. Except for social functioning and mental health, all SF-36 subscale scores were significantly lower and the mean STAI and BDI scores were higher for mothers of children with SB (P<0.001). SF-36, STAI, and BDI scores were not associated significantly with the child’s age, sex, number of siblings, and mother’s age. This study shows that the quality of life is affected negatively for mothers of children with SB. The clinician should pay close attention to the psychosocial status of mothers of these children within the scope of disease management.

Author Information

Departments of aPediatric Nephrology

bPediatrics, Haseki Educational and Research Hospital, Istanbul, Turkey

Correspondence to Mahmut Civilibal, MD, Department of Pediatric Nephrology, Haseki Educational and Research Hospital, 34096 Istanbul, Turkey Tel: +90 212 529 44 00; fax: +90 212 589 62 56; e-mail: drcivilibal@hotmail.com

© 2014 by Lippincott Williams & Wilkins, Inc.