Skip Navigation LinksHome > August 2012 - Volume 55 - Issue 2 > Commentaries on “Workshop Report: Developing a Pediatric In...
Journal of Pediatric Gastroenterology & Nutrition:
doi: 10.1097/MPG.0b013e318260508a
Invited Commentary

Commentaries on “Workshop Report: Developing a Pediatric Inflammatory Bowel Diseases Network and Data Platform in Canada”: COLLABORATIVE CHRONIC CARE NETWORK (C3N) OF THE FUTURE

Colletti, Richard B.

Free Access
Article Outline
Collapse Box

Author Information

University of Vermont—Pediatrics, Burlington.

Address correspondence and reprint requests to Richard B. Colletti, MD, University of Vermont—Pediatrics, Burlington, VT (e-mail: Richard.Colletti@uvm.edu).

Received 11 February, 2012

Accepted 24 February, 2012

The author reports no conflicts of interest.

Collaborative chronic care networks of the future will be major contributors to advances in clinical knowledge. What will this future look like? Pediatric gastroenterologists at a majority of centers commit to working together to improve the care and outcomes of their patients, forming a network in which data from all patient visits are collected for a common database; analyses are used immediately for quality improvement and subsequently for research; open-source science ensures that patient data are widely available for investigation; and a federated (centralized) institutional review board provides efficient and effective protection of patient confidentiality. The clinician quickly enters information about the patient during each clinic visit on a standardized form in the electronic health record; the data are electronically extracted and made accessible to the common database, directly or through a local node; data-in-once ensures that patient data are not wasted but are used for clinical care, improvement, and research. The network provides frequent reports that clinicians use for clinical decisions, population management, previsit planning, self-auditing, and redesign of care delivery. Patients, families, clinicians, researchers, and improvement scientists communicate and work together in this collaborative chronic care network (C3N). Patient-reported outcomes are included as well. Is this realistic? The ImproveCareNow Network (1–5), which has grown to 36 centers with 300 pediatric gastroenterologists and 10,000 patients with Crohn disease and ulcerative colitis, is becoming such a C3N, a learning health system for improvement, innovation, and discovery. A Canadian network has an opportunity to do so as well (6).

Back to Top | Article Outline

REFERENCES

1. Crandall W, Kappelman MD, Colletti RB, et al. ImproveCareNow: the development of a pediatric IBD improvement network. Inflamm Bowel Dis 2011; 17:450–457.

2. Crandall WV, Boyle BM, Colletti RB, et al. Development of process and outcome measures for improvement: lessons learned in a quality improvement collaborative for pediatric inflammatory bowel disease. Inflamm Bowel Dis 2011; 17:2184–2219.

3. Crandall WV, Margolis PA, Kappelman MD, et al. Improved outcomes in a quality improvement collaborative for pediatric inflammatory bowel disease. Pediatrics 2012;129:e1030–41.

4. National Institutes of Health TR01. Open Source Science: Transforming Chronic Illness Care. Grant 1-R01DK085719-01, National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), 2009–2014.

5. Agency for Healthcare Research and Quality. Building Modular Pediatric Chronic Disease Registries. 1 HS R01 HS 20024-01, 2010–2013.

6. Sherman PM, Brown S, Rose K, et al. Workshop report: developing a pediatric inflammatory bowel diseases network and data platform in Canada. J Pediatr Gastroenterol Nutr 2012;55:125–30.

© 2012 by European Society for Pediatric Gastroenterology, Hepatology, and Nutrition and North American Society for Pediatric Gastroenterology,

Login

Article Tools

Share

Connect With Us

 

 

Twitter

twitter.com/JPGNonline

 

Visit JPGN.org on your smartphone. Scan this code (QR reader app required) with your phone and be taken directly to the site.