Workshop Report: Developing a Pediatric Inflammatory Bowel Diseases Network and Data Platform in Canada

Sherman, Philip M.; Brown, Sally; Rose, Keeley; Murphy, Tim; Makarchuk, Mary-Jo; Paterson, William; Belanger, Paul

Journal of Pediatric Gastroenterology & Nutrition:
doi: 10.1097/MPG.0b013e3182604f3c
Special Feature
Abstract

ABSTRACT: The purpose of the workshop was to receive input from the Canadian pediatric inflammatory bowel diseases research community to develop a research funding opportunity for a Canadian pediatric inflammatory bowel diseases network and data platform supported by the Canadian Institutes for Health Research, in partnership with the Foundation for Children with Intestinal and Liver Disorders. Leaders from across the country came together, with the objectives of identifying the scientific goals for a Canadian pediatric inflammatory bowel disease network, the required infrastructure, and an appropriate governance structure needed to achieve such a network and data platform, as well as other elements needed to ensure the successful implementation of a network.

Author Information

Canadian Institutes of Health Research, Ottawa, Ontario, Canada.

Address correspondence and reprint requests to Philip M. Sherman, MD, FRCPC, Room 207L, Banting Building, 100 College St, Toronto, ON M5G 1L5, Canada (e-mail: philip.sherman@sickkids.ca).

Received 5 December, 2011

Accepted 2 April, 2012

This report provides a summary of a national consultative workshop sponsored by the Canadian Institutes of Health Research (CIHR) Institute of Nutrition, Metabolism, and Diabetes and the Foundation for Children with Intestinal and Liver Disorders held in Toronto, Ontario, Canada, on June 27, 2011. The work was published as a report of the CIHR (ISBN numbers 978-1-100-19456-1 and 978-1-100-98114-7).

The authors report no conflicts of interest.

© 2012 by European Society for Pediatric Gastroenterology, Hepatology, and Nutrition and North American Society for Pediatric Gastroenterology,