Skip Navigation LinksHome > April 2013 - Volume 45 - Issue 2 > Experiences of Living With Myasthenia Gravis: A Qualitative...
Journal of Neuroscience Nursing:
doi: 10.1097/JNN.0b013e31828291a6
Article: Online Only

Experiences of Living With Myasthenia Gravis: A Qualitative Study With Taiwanese People

Chen, Yu Tai; Shih, Fu Jin; Hayter, Mark; Hou, Chang Chiu; Yeh, Jiann Horng

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Abstract

ABSTRACT: Myasthenia gravis (MG) is an auto-immune, neuromuscular disorder, which presents with symptoms of fluctuating muscle fatigue because of a dysfunction of the neuromuscular junction. This study explores the illness experience of patients with MG, their experiences of illness, its challenges, and their coping and support strategies. In-depth interviews were undertaken with nine participants with MG (six for a generalized type of MG, three for ocular type). Data were subjected to inductive content and thematic analysis. Four themes emerged from MG patients with associated subthemes. They were “perceptions of MG,” “challenges of MG, “social support,” and “adapting and adjusting to MG.” The study reveals the way in which individuals respond to and cope with their diagnosis. The importance of social and peer support is a key factor as well as the development of psychological strategies to live with MG. The recognition that there was a need to recognize the role of Western medicine in controlling their disease was also an important finding.

© 2013 American Association of Neuroscience Nurses

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