ABSTRACT: The functional changes that develop because of neurological sequelae in patients with a brain tumor have a negative effect on daily activities and self-care. This situation in turn has a negative effect on the lives of the patients' relatives and increases their work load. We interviewed 10 relatives of patients who had undergone cranial surgery for a brain tumor as part of a descriptive qualitative study and asked them to describe their experiences during the perioperative period and home care. The data obtained from the patients' relatives were evaluated using Colaizzi's analysis method and divided into three categories and eight themes: (a) personal feelings (first reactions, decision for surgery, first meeting with the patient after surgery, ambiguity), (b) management of the changes (management of the side effects of the tumor, management of role and behavioral changes, management of care at home, social support), and (c) need for knowledge about managing the disease process. We found that brain tumor surgery can be more frightening for patients and their relatives than other surgical interventions. Also, because the patient requires prolonged postoperative care, the patient's family plays an important role at every stage of the patient's treatment and care.
Gulsah Kose, RN, is an MSc student at the Neurosurgery Department, Gulhane Military Medical Academy, Ankara, Turkey.
Emine Iyigun, PhD RN, is an assistant professor at the School of Nursing, Gulhane Military Medical Academy, Ankara, Turkey.
Hatice Ayhan, MSc RN, is a PhD Student at the School of Nursing, Gulhane Military Medical Academy, Ankara, Turkey.
Halise Coskun, PhD RN, is a chief nurse at the Canakkale Military Hospital, Canakkale, Turkey.
Sevgi Hatipoglu, PhD RN, is a professor at the School of Nursing, Gulhane Military Medical Academy, Ankara, Turkey.
Question or comments about this article may be directed to Sevinc Tastan, PhD RN, at firstname.lastname@example.org. She is a faculty member of the School of Nursing, Gulhane Military Medical Academy, Ankara, Turkey.