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Caregivers' Experience: Bimonthly Participation in a Year-Long Research Interview Process

Pierce, Linda L.; Steiner, Victoria; Pitzen, Heidi; Grothaus, Elizabeth

Journal of Neuroscience Nursing:
doi: 10.1097/JNN.0b013e3181aaaa89

New caregivers of stroke survivors participated in a bimonthly research interview process for a year-long intervention study. The purpose of this current project was to describe the telephone interview experience for those in the study's control group. We purposively selected 14 participants to answer a telephone survey. The following themes emerged: (a) looking forward to talking with someone, (b) feeling helped and staying connected, (c) being busy caregiving and taking care of business, (d) helping others, and (e) being ambivalent or negative about the interview process. Orem's self-care deficit nursing theory was then applied to reflect upon these themes. It is important for nurse researchers to remember that interviews used for data collection are not neutral or noninteractive.

Author Information

Victoria Steiner, PhD, is an assistant professor, University of Toledo College of Medicine, Toledo, OH.

Heidi Pitzen, BBA MSN RN, is a staff nurse, University of Toledo Medical Center, Toledo, OH.

Elizabeth Grothaus, MSN RN CNS, is an instructor, University of Toledo College of Nursing, Toledo, OH.

Questions or comments about this article may be directed to Linda L. Pierce, PhD RN CNS CRRN FAHA, at She is a professor at the University of Toledo College of Nursing, Toledo, OH.

© 2009 American Association of Neuroscience Nurses