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Nursing Issues in Caring for Children with Moyamoya Vasculopathy and Their Families

Hune, Selina Y. C.; deVeber, Gabrielle A.; MacGregor, Daune L.; Dirks, Peter B.; Yu, Herta Wai‐Ham; Soman, Teesta B.; Allen, Anita; Golomb, Meredith R.

Journal of Neuroscience Nursing: February 2007 - Volume 39 - Issue 1 - p 33–39
Article

Moyamoya vasculopathy is a rare, progressive neurovascular condition that may cause recurrent transient ischemic attacks, ischemic strokes, hemorrhagic strokes, or neurologic decline in children. Children with moyamoya disease have no clear contributing etiology, but children with moyamoya syndrome have contributory diagnoses such as Down syndrome or neurofibromatosis. The concerns and lived experiences of children affected by this disease and their families have not been well explored or addressed in the nursing literature. Nurses who understand this lived experience increase their own knowledge of the disease so they can manage the complex medical issues, educate families about the disease, and provide emotional support.

Questions or comments about this article may be directed to Meredith Golomb, MD MSc, at mgolomb@iupui.edu or Selina Hune, MScNP RN D.HA(c)1, at selina.hune@sunnybrook.ca.

*Please refer to the end of the article for author biographies.

Selina Y. C. Hune, MScNP RN D.HA(c)1, is an advanced practice nurse at Sunnybrook Health Science Centre in Toronto, Ontario, Canada.

Gabrielle A. deVeber, MD FRCP(C), is an associate professor at the University of Toronto; a scientist in the Population Health Sciences Program; and a director of the Children's Stroke Program, Division of Neurology, at The Hospital for Sick Children in Toronto, Ontario, Canada.

Daune L. MacGregor, MD FRCP(C), is a professor of paediatrics (neurology) at the University of Toronto, and associate chair of clinical paediatrics and associate paediatrician‐in‐chief at The Hospital for Sick Children in Toronto, Ontario, Canada.

Peter B. Dirks, MD PhD, is an associate professor of neurosurgery at the University of Toronto; a scientist in the Developmental and Stem Cell Biology Program; and a staff neurosurgeon at The Hospital for Sick Children in Toronto, Ontario, Canada.

Herta Wai‐Ham Yu, RN MN‐ACNP, is an acute care nurse practitioner in the Division of Neurosurgery at The Hospital for Sick Children in Toronto, Ontario, Canada.

Teesta B. Soman, MD MBA FAAP DABPN, is an assistant professor of paediatrics at the University of Toronto and a staff neurologist and director of continuing medical education, Division of Neurology, at The Hospital for Sick Children in Toronto, Ontario, Canada.

Anita Allen, BSc RN, is a neurology clinic registered nurse at The Hospital for Sick Children in Toronto, Ontario, Canada.

Meredith R. Golomb, MD MSc, is an assistant professor in the Division of Pediatric Neurology, Department of Neurology, at Indiana University School of Medicine in Indianapolis, IN.

© 2007 American Association of Neuroscience Nurses