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Art Making From the HEART: A Pediatric Case Study About Coping and Distraction During Oncology Treatments

Bultas, Margaret W. PhD, RN, CNE, CNL, CPNP-PC; Saini, Shermini MD; Marty, Justine CCLS; Hendricks-Ferguson, Verna L. PhD, RN, CHPPN, FPCN, FAAN

Journal of Hospice & Palliative Nursing: December 2017 - Volume 19 - Issue 6 - p 565–570
doi: 10.1097/NJH.0000000000000389
Feature Articles

Diagnosis and treatment of childhood cancers are a potentially traumatic time of both emotional and physical distress for affected children and parents. Psychosocial palliative care interventions are needed to assist children to cope with unpleasant adverse effects during oncology treatments. Positive distraction techniques, such as art making, have shown evidence to reduce perceived pain and anxiety responses during cancer treatments. This exemplar case study highlights benefits of implementing an art-making project with an 11-year-old girl undergoing treatment for neuroblastoma, using an innovative and developmentally appropriate activity called the heirloom art-making (HEART) intervention. In the HEART intervention, the child and parent choose a meaningful photograph or picture that is transformed into a paint-by-number canvas, providing a fun activity for the parent and child to focus on together. The completed painting can be kept as a cherished family keepsake. Art-making projects, such as the HEART, can potentially be used by nurses to foster developmentally appropriate, nonpharmacological, palliative care interventions to help children focus on secondary-control coping strategies (ie, distraction) during oncology treatments. Art-making projects also provide a fun mechanism to foster positive interactions between nurses and patients, an opportunity for parent involvement, and a sense of normalcy for child and parents during oncology treatments.

Margaret W. Bultas, PhD, RN, CNE, CNL, CPNP-PC, is associate professor, School of Nursing, Saint Louis University, MO.

Shermini Saini, MD, is director, Footprints Program, Division of Hematology/Oncology, Costas Center, BMT, SSM Health Cardinal Glennon Children's Hospital, St Louis, MO.

Justine Marty, CCLS, is certified child life specialist, Division of Hematology/Oncology, Costas Center, BMT, SSM Health Cardinal Glennon Children's Hospital, St Louis, MO.

Verna L. Hendricks-Ferguson, PhD, RN, CHPPN, FPCN, FAAN, is associate professor, School of Nursing, Saint Louis University, MO.

Address correspondence to Margaret W. Bultas, PhD, RN, CNE, CNL, CPNP-PC, School of Nursing, Saint Louis University, 3525 Caroline Mall, St. Louis, MO, 63104–1099 (mbultas@slu.edu).

The authors have no conflicts of interest to disclose.

The authors disclose receipt of financial support for the research, authorship, and/or publication of this article. Dr Verna L. Hendricks-Ferguson received the following 2 research awards to partially fund this study: (a) Intramural Research Award received from Saint Louis University School of Nursing and (b) Marilyn Rubin Research Award received from the Sigma Theta Tau International Honor Society: Delta Lambda Chapter.

© 2017 by The Hospice and Palliative Nurses Association.