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Good Palliative Care: How and Where?: The Patients Opinions

Harstäde, Carina Werkander MSN, RNT; Andershed, Birgitta PhD, RNT

Journal of Hospice & Palliative Nursing:
Article
Abstract

The aim of this study was to describe what patients with cancer who are in the final stage of life consider to be good palliative end-of-life care and where they think such care should be carried out. Nine patients receiving palliative end-of-life care were interviewed and the material was analyzed using Grounded Theory. Three main categories (and 7 subcategories) emerged during the analysis: safety, participation, and trust. They were conceptualized metaphorically as a wheel that rolls along smoothly as long as the care is good and all 3 categories are present. The concepts of safety, participation, and trust were interwoven with the patients’ beliefs about where this care should be carried out. The majority said that they wanted to be cared for in the hospital.

Author Information

Carina Werkander Harstäde, MSN, RNT, Department of Caring Sciences, Karolinska Institute, Gotland University College, Visby, Sweden.

Birgitta Andershed, PhD, RNT, Department of Caring Sciences, Örebro University, Örebro, Sweden, and Department of Health Care Sciences, Ersta Sköndal University College, Stockholm, Sweden.

Address correspondence to Carina Werkander Harstäde, MSN, RNT, Department of Caring Sciences, Karolinska Institute, Gotland University College, Gotland, S-621 67 Visby, Sweden (e-mail: carina.harstade@omv.ki.se).

© 2004 The Hospice and Palliative Nurses Association