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Expect a Miracle

Burr, Kristi Schmitt; Hughes, Patricia; LaRosa, Sheila

Journal of the Dermatology Nurses' Association: January/February 2012 - Volume 4 - Issue 1 - p 42–44
doi: 10.1097/JDN.0b013e318242d69d
Feature Articles

ABSTRACT: Basal cell carcinoma nevus syndrome (also known as Gorlin syndrome or nevoid basal cell syndrome) is an autosomnal dominant, genetic disorder. The syndrome is passed on by one affected parent or occurs as a spontaneous mutation occurring at conception. Approximately 33% of all affected individuals are the first in their family to have the condition. This first-person story is about experiencing a new systemic treatment.

Kristi Schmitt Burr, BCCNS Life Support Network, Burton, Ohio.

Patricia Hughes, BCCNS Life Support Network, Burton, Ohio.

Sheila LaRosa, BCCNS Life Support Network, Burton, Ohio.

The authors declare no conflicts of interest.

Correspondence concerning this article should be addressed to Kristi Schmitt Burr, BCCNS Life Support Network, PO Box 321, Burton, OH 44021. E-mail: info@bccns.org

© 2012 Lippincott Williams & Wilkins, Inc.