Skip Navigation LinksHome > Resources & Links

Resources & Links


A collection of useful resources and links from Heart Insight magazine, the American Heart Association and the American Stroke Association.

 

General | Specific Conditions | Caregivers | Money Matters

 

General

Heart And Stroke Encyclopedia
An “A to Z” compendium of knowledge from the AHA.

Patient Information Sheets
Answers by Heart is a series of downloadable information sheets from the AHA in a question-and-answer format that's brief, easy to follow and easy to read.

Specific Conditions

Arrhythmia
Information for newly diagnosed arrhythmia (irregular heart rhythm) patients, their caregivers and healthcare professionals who do not specialize in cardiology.

Cholesterol
Managing elevated cholesterol with diet, physical activity and medication.

CPR Anytime
A portable instruction kit that includes a manual, DVD and manikin to learn CPR anywhere, anytime - at home, at the office or at school . Kits are available with adult or infant manikins.

Diabetes
The Heart Of Diabetes Web site was created by the AHA to help those who have diabetes lower their risk for heart disease and stroke.

Heart Attack
Assessing risk of heart attack, prevention, procedures/treatments, and life after a heart attack.

Heart Failure
Information and resources, as well as an interactive forum/message board to ask questions and share observations.

High Blood Pressure
Managing high blood pressure with diet, physical activity and medication; also includes a risk calculator.

Obesity
How weight affects the heart, and strategies for reaching and maintaining a healthy weight.

Peripheral Artery Disease (PAD)
Risk factors for, and causes of, PAD; also includes treatment options.

Caregivers

Government Programs

National Respite Coalition
703-256-9578
Federal funding to state and local agencies nationwide for respite care to family caregivers, and training volunteers providing respite care.

Cash & Counseling
617-552-2809
Medicaid recipients in AL, AR, FL, IL, IA, KY, MI, MN, NJ, NM, PA, RI, VT, WA and WV can pick their own paid caregivers and decide what services are needed, like housekeeping or help with bathing.

Paid Family Leave Law
415-864-8848
Most Californians can get up to six weeks of partial pay from the employee-funded State Disability Insurance program to stay home with a seriously ill relative.

Family Leave Law
808 586-8842
Employers in Hawaii who provide paid sick leave and have at least 100 workers must allow employees who have worked at least six months to use their leave to care for relatives.

Enhanced Adult Family Care
800-841-2900, 800-243-4636
Medicaid-eligible Massachussetts residents can receive round-the-clock paid home care from a friend or relative. To be eligible for the program, seniors must need assistance with activities like bathing, dressing or eating.

Choices for Care
800-642-5119
Medicaid-eligible Vermont residents needing assistance can choose the type of care they receive: home care (choosing the caregiver), community-based care or a nursing home.

Eldercare Locator
800-677-1116
A service of the U.S. Administration on Aging that helps consumers find local agencies that can help caregivers and elderly patients find and access home and community-based services like transportation, meals, home care, and caregiver support.

Organizations

American Association of Caregiving Youth
800-725-2512
Information and resources for students who help look after someone with a disability or illness.

American Association of Retired Persons 
202-434-3525 or 888-OUR-AARP
Includes information on caregiving under the “Family, Home and Legal” tab. 

Assisted Living Federation of America
703-691-8100
Professional association for operators of assisted living facilities provides consumer information on finding and evaluating this option.

Boca Respite Volunteers/Caregiving Youth Project
561-391-7401
This group’s mission is to recognize, support and promote awareness of  youth who are both students and caregivers.

CareFinder
800-272-3900
This Web site is sponsored by the Alzheimer's Association, but can be used by anyone who needs help with finding and coordinating care, as well as information on support and resources.

Consumer Consortium on Assisted Living
703-533-8121
Advocacy and patient protection group that helps consumers find and evaluate assisted living facilities.

Family Caregiver Alliance
415-434-3388 or 800-445-8106
Provides caregiver support and educational opportunities through research, advocacy, legal consultation and training workshops.

Family Caregiving 101
Provides new ideas and helpful advice for you and a loved one who is chronically ill or disabled.

Heartmates
612-558-3331
Resources for the spouse, family and loved ones of a heart patient.

Heart Of Caregiving
This AHA Web site helps you find a balance between taking care of someone else and taking care of yourself so you don’t become physically and emotionally depleted. Also provides information on caregiver and patient resources.

The Mended Hearts, Inc.
888-HEART99
Provides support for the emotional aspects of recovering from heart-related illness. There are some 260 chapters nationwide; the Albany, NY, chapter is dedicated to heart transplant recipients.

National Alliance for Caregiving
info@caregiving.org
Provides support to family caregivers and the professionals who help them.

National Center for Assisted Living
202-842-4444
Advocacy and patient protection group that helps consumers find and evaluate assisted living facilities, as well as helps promote uniform professional and quality standards nationwide for long-term care.

National Family Caregivers Association
800-896-3650
Free membership offered to caregivers, who can then receive a newsletter, resource referrals and other benefits.

Visiting Nurse Associations of America
888-866-8773
The VNA chapter in your area can point you to home healthcare services that can give a caregiver some much-needed time off.

The Well Spouse Association
800-838-0879
A nonprofit group providing support and advocacy for spouses and children of people who are chronically ill.

Money Matters

Employment Services for People with Disability
Receive accurate information about the Social Security Administration's employment support programs and where you can get the services you need to make a successful entry into the workforce.

AARP Tax-Aide
AARP Tax-Aide is administered through the AARP Foundation in cooperation with the IRS. The AARP Foundation is AARP's affiliated charity. Foundation programs provide security, protection and empowerment for low-income older persons in need.

AARP Money Management Program
This program offers daily money management service to help low-income older or disabled people who have difficulty budgeting, paying routine bills and keeping track of financial matters.

American Association for Daily Money Managers
Daily money managers (DMMs) provide personal business assistance to clients who have difficulty in managing their personal monetary affairs. The services meet a continuum of needs, from organizing and keeping track of financial and medical insurance papers, to assisting with check writing and maintaining bank accounts. The site provides questions to ask before hiring a money manager.

Cutting Rx Costs

NeedyMeds.com
Offers a database of patient assistance programs offered by pharmaceutical companies to offset some of the cost of necessary prescriptions.

Partnership for Prescription Assistance
888-477-2669
A means-tested program that helps patients without prescription drug coverage get the medicines they need for free or nearly free via 475 public and private programs, including 180 offered by pharmaceutical companies.

Rx Assist
Lists public and private resources available, though limited, that may help patients afford the medicines they need.

Medicare
Information about prescription drug programs available through Medicare.

Help With Health Insurance Issues And Costs

The Access Project
617-654-9911
A resource center for local communities working to improve health and healthcare access.

Chronic Disease Fund
877-968-7233
Financial assistance for underinsured patients.

Families USA
202-628-3030
Answers questions about Medicaid, Medicare and private health insurance, and helps people locate local providers of low-cost or free health care, including prescription drug assistance.

The HealthWell Foundation
800-675-8416
Helps patients with insurance who cannot afford co-payments, co-insurance, and premiums associated with costly medical treatments for chronic or life-threatening medical conditions.

Patient Advocate Foundation
800-532-5274
Provides professional case management services to patients with chronic, life threatening and debilitating illnesses, by serving as liaisons between them and their insurers, employers and/or creditors.