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Maximizing the Impact of the Cystic Fibrosis Family Education Program: Factors Related to Program Diffusion

Bartholomew, Kay L. EdD, MPH; Czyzewski, Danita I. PhD; Swank, Paul R. PhD; McCormick, Laura DrPH; Parcel, Guy S. PhD

Health Promotion and Chronicity

The impact of a health education program to help families manage chronic disease will be determined not only by the demonstrated effectiveness of the intervention but also by the quality and breadth of program implementation. A theory-based intervention is evaluated that diffuses the Cystic Fibrosis Family Education Program (CF FEP) to approximately 20,000 families nationwide. Surveys of 106 Cystic Fibrosis Foundation-certified CF centers are used in a cross-sectional study of the theory-based determinants of diffusion. Results describe: (1) the proportion of CF centers targeted who adopted and implemented the CF FEP; (2) the perceptions of program or center characteristics associated with program use, fidelity and maintenance/institutionalization; and (3) the relationship between the method of decision-making used by the center to adopt the program and program use, fidelity, and maintenance/institutionalization.

Assistant Professor and Associate Director, Center for Health Promotion Research and Development, University of Texas Health Science Center, Houston, Texas (Bartholomew)

Assistant Professor, Department of Pediatrics, Baylor College of Medicine, Houston, Texas (Czyzewski)

Professor, Department of Educational Psychology, College of Education, University of Houston, Houston, Texas (Swank)

Assistant Professor, Department of Health Promotion and Behavior, University of Georgia, Athens, Georgia (McCormick)

Professor and Director, Center for Health Promotion Research and Development, University of Texas Health Science Center, Houston, Texas (Parcel)

The development and evaluation of the Cystic Fibrosis Family Education Program were supported by the National Heart, Lung and Blood Institute of the National Institutes of Health, Grant # 38339. The diffusion study described in this report was funded by an educational grant from Genentech, Inc. The authors wish to acknowledge the work of Edna Stoehr on the diffusion survey and Carla Warnecke on data management.

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