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Registry Participation in Neuromuscular Disease

Shenoy, Anant M. MD

doi: 10.1212/CON.0000000000000398
Practice Issues

ABSTRACT: Patient registries are a resource to better study neurologic disease and may facilitate the development of future treatments. Clinicians should become comfortable with the strengths and limitations of patient registries and be able to discuss them with their patients. This article discusses the use of patient registries through the example of registries for patients with neuromuscular disease.

Address correspondence to Dr Anant M. Shenoy, Department of Neurology, Baystate Medical Center, 3300 Main St, Springfield, MA 01107, anantshenoymd@gmail.com.

Relationship Disclosure: Dr Shenoy reports no disclosure.

Unlabeled Use of Products/Investigational Use Disclosure: Dr Shenoy reports no disclosure.

© 2016 American Academy of Neurology
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