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Research Involving Participants With Chronic Diseases: Overcoming Recruitment Obstacles

Miller, Wendy R. PhD, RN, CCRN; Bakas, Tamilyn PhD, RN, FAHA, FAAN; Buelow, Janice M. PhD, RN, FAAN; Habermann, Barbara PhD, RN, FAAN

doi: 10.1097/NUR.0b013e3182a8725a
Feature Article

Chronic diseases are rampant in the United States and account for the majority of healthcare costs in this country. The implementation of research studies involving members of chronic disease populations is necessary to the development of interventions aimed at preventing these conditions and improving outcomes. The implementation of such studies hinges on the successful recruitment of an adequate number of study participants. Difficulties surrounding participant recruitment in behavioral studies are well documented and present a barrier to researchers aiming to conduct research involving persons with chronic diseases. Common recruitment challenges associated with recruiting chronic disease participants are reviewed, and a highly effective, alternative recruitment strategy used by the authors in a qualitative study involving persons with epilepsy is discussed in detail.

Author Affiliations: Assistant Professor, Department of Adult Health (Dr Miller); Professor, Department of Adult Health (Dr Bakas); Associate Professor, Department of Adult Health (Dr Buelow); Associate Professor, Department of Family Health (Dr Habermann), Indiana University School of Nursing, Indianapolis.

Drs Miller and Bakas are now with the Department of Clinical Nursing Science, Indiana University, Dr Buelow is now with the Epilepsy Foundation of America, Dr Habermann is now with the University of Delaware School of Nursing.

This work was supported by a grant from the National Institute for Nursing Research, National Institutes of Health: 1F31NR012114-01-02.

The authors report no conflicts of interest.

Correspondence: Wendy R. Miller, PhD, RN, CCRN, Department of Adult Health, Indiana University School of Nursing, 1033 East 3rd Street, Sycamore Hall, Room 441, Bloomington, IN 47405 (wrtruebl@indiana.edu).

© 2013 Wolters Kluwer Health | Lippincott Williams & Wilkins