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Creating Patient and Family Education Web Sites: Design and Content of the Home Parenteral Nutrition Family Caregivers Web Site

FITZGERALD, SHARON A. MPH; MACAN YADRICH, DONNA MPA, CCRP; WERKOWITCH, MARILYN BSN, RN; PIAMJARIYAKUL, UBOLRAT PhD, RN; SMITH, CAROL E. PhD, RN

CIN: Computers, Informatics, Nursing: November 2011 - Volume 29 - Issue 11 - p 637–645
doi: 10.1097/NCN.0b013e31822bef7a
Continuing Education

When managing chronic illnesses, caregivers repeatedly seek online information about providing complex, long-term care but often neglect to find information about how to care for themselves. Poor health among caregivers is not only detrimental to their own well-being but may also result in harm to those for whom they care. For this reason, caregivers need access to information and activities about caring for themselves in addition to the information about managing home care they are already likely to seek. The HPN Family Caregivers Web site was developed to guide caregivers through the process of caring for themselves by establishing a caregiving routine, self-monitoring their mental and physical health, and practicing good sleep hygiene, while also managing the complexities of home care. While Web site information, activities, and algorithms for managing chronic illnesses need to be specific to each population, the content guiding caregivers to care for their own health is universal.

Author Affiliations: School of Nursing (Mss Fitzgerald, Yadrich, Werkowitch, and Dr Piamjariyakul); and School of Nursing, Preventive Medicine and Public Health (Dr Smith), University of Kansas.

The project described is part of a larger study supported by the National Institute of Nursing Research (NINR) grant NR09078.

The content is solely the responsibility of the authors and does not necessarily represent the official views of the NINR or the National Institutes of Health.

The authors have disclosed that they have no significant relationships with, or financial interest in, any commercial companies pertaining to this article.

Corresponding author: Sharon A. Fitzgerald, MPH, School of Nursing, University of Kansas Medical Center, 3901 Rainbow Blvd, Mail Stop 4043, Kansas City, KS 66160 (sfitzgerald@kumc.edu).

© 2011 Lippincott Williams & Wilkins, Inc.