When contemplating social events, we will commonly ask each other, "Are you going to be there?" We like to know that individuals whom we enjoy will likely be present at the same events. When we anticipate life events that have uncertainties to them, we like to know that someone whom we trust and who we have reason to believe cares about us, will be in the life event with us. Treatment for cancer is one of those life events. Patients want to know who will be there with them. Patients are most assuredly interested in the forms of treatment available to them, but they especially want to know that they matter to others, including those who are administering their cancer treatment. Part of what makes an oncology nurse's care effective is the nurse's willingness to be there with a cancer patient, to connect with and care about the patient and about the patient's life and illness. This human connection between an oncology nurse and a cancer patient and the patient's family is now being identified in studies as what is most memorable about treatment and what is most sustaining to families whose family member did not survive the disease. Patients and families describe oncology nurses with adjectives including kind, supportive, informative, and trustworthy.1-3 What is it about the oncology nurse and the nurse's care that is so sustaining to patients or to their survivors that it is reported as a source of comfort by patients and families for years after the actual care experienced?
Fortunately, what patients and families refer to is the most common of all elements of oncology nursing care: the human connection. This connection is the interface between nurse and patient; nurse and family members; nurse and other clinical care team members; nurse and ideas about care; and between the nurse and self-images, including self-compassion and forgiveness. A desire to form human connections is a motivation for becoming an oncology nurse; the human connection between the oncology nurse and the patient and family can offset difficult relationships with peers, disappointments with leaders, and even the irritations of inconsistently available resources and supplies for care.4 The disappointment in self for not being able to form such connections well (or to be there for patients and for families) has been one of the reasons for oncology nurses choosing to exit oncology nursing. This human connection between the oncology nurse and the patient and family is sustaining for the patient, the family, and for the nurse and is a treatment intervention. Amazingly, we know some of the outcomes of the human connection as a treatment because of patient and family reports, but we do not know the critical components of this human intervention in fine detail or the factors (environmental, personal, professional, or clinical) that influence the ability of the oncology nurse to deliver this treatment.
There is no form of mainstream cancer treatment (chemotherapy, radiotherapy, surgery, biotherapy) and no level of cancer prevention that is unaffected by the human connection between the oncology nurse and the patient or family. Cancer treatments have focused increasingly on the smallest elements of the human body (ie, genes, polymorphisms), but the usefulness of these smallest elements in cancer treatment will be dependent on oncology nursing care and the human connection between the oncology nurse and the patient. To be effective, treatment needs to be acceptable, understandable, and described in a way that resonates with patients' life priorities. The acceptability of treatment relies on the ability of the oncology nurse and that of other clinicians to make a human connection with patients such that we can prepare them well for the experience of treatment in terms of what it could mean for their lives.
When we reflect on the human connections in our oncology nursing practice, our reflections include clinical interactions that were remarkably positive (the peak experiences) or memorably negative (the nadir experiences). The emotion that accompanies these reflections can be powerful enough that we reexperience the emotion with the recalled memory and move quickly and with purpose to end the reflection and instead focus on the next life event. By suppressing the memory and the emotion and moving doggedly to the next life event, we miss a sure chance to learn from ourselves the mystery of how it is that oncology nursing makes the human connection with patients and their families that proves to be the sustaining, memorable part of treatment. Instead of not attending and analyzing the human connection, let us study this element of our practice that gives such sustenance to others as well as to ourselves. How and when are such human connections made? What are the patterns across such human connections? What are the common elements in these connections, and are they common enough that they could be titrated to benefit different patient situations? How are these human connections maintained between a nurse and a patient? What environmental, personal, professional, or clinical factors influence the human connection in positive or adverse ways? The human connection in oncology nursing needs careful study, but in the interim we will continue to be there for oncology patients and their families, for our colleagues, and for ideas that will improve our care.
My very best to you.
Pamela S. Hinds, PhD, RN, FAAN
Editor-in-Chief, Cancer Nursing™
1. Zamanzadel V, Azimzadeh R, Rahmani A, et al. Oncology patients' and professional nurses' perceptions of important nurse caring behaviors. BMC Nurs
. 2010;9(10). http://www.biomedicalcentral.com/1472-6955/9/10
. Accessed November 14, 2010.
2. Masood J, Forristal H, Cornes R, et al. An audit of patient satisfaction with uro-oncology nurse specialists-a questionnaire study. Int J Urol Nurs
3. Van Rooyen D, le Roux L, Kotze WJ. The experiential world of the oncology nurse. Health SA Gesondheid
4. Steen B, Burghen E, Hinds PS, et al. Development and testing of the role-related meaning scale for staff in pediatric oncology. Cancer Nurs