Background: By receiving palliative treatment over time, a growing number of people with advanced gastrointestinal cancer are living longer. An image of palliative care, often existing in the public, as being exclusively for the dying could thus be particularly challenging in relation to patients’ making sense of receiving palliative treatment over time.
Objective: The aim was to interpret how patients diagnosed with advanced gastrointestinal cancer make sense of receiving palliative treatment.
Methods: A phenomenological life-world approach was chosen. Seven men and 7 women with advanced gastrointestinal cancer receiving palliative treatment were followed up using repeated narrative interviews, which took place at a Swedish oncology clinic. In total, 66 interviews were conducted. The analysis followed hermeneutic principles and was interpreted stepwise.
Results: Making sense was revealed as a phenomenon constructed narratively, through patients’ searching for knowledge and understanding, approached by a dialectic pattern of living in wait and in the present, and finally, as a process of human learning through being and becoming, which transforms the experience and results in a changed personal experience.
Conclusion: Making sense of receiving palliative treatment is a process of human learning at the end of life, characterized by an ongoing search for knowledge and understanding. To enhance patients’ sense making in this context, professionals need to go beyond “providing information.”
Implications for Practice: The attention of health professionals must be directed at recognizing and enhancing patients’ ways of seeking knowledge to help them make sense of receiving palliative treatment. Person-centered activities need to be developed.
Author Affiliations: Institute of Health Care Sciences, Sahlgrenska Academy at the University of Gothenburg (Drs Öhlén, Wallengren Gustafsson, and Friberg); University of Gothenburg Centre for Person-Centred Care (Drs Öhlén and Friberg); and Department of Palliative Care Research, Ersta Sköndal University College, Stockholm (Dr Öhlén), Sweden; and Department of Health, Faculty of Social Sciences, University of Stavanger, Norway (Dr Friberg).
The authors have no funding or conflicts of interest to disclose.
Correspondence: Joakim Öhlén, PhD, RN, Institute of Health Care Sciences, Sahlgrenska Academy at the University of Gothenburg, Box 457, SE-405 30 Göteborg, Sweden (firstname.lastname@example.org).
Accepted for publication July 30, 2012.