In response to the August issue's cover photo, described in On the Cover, we wish to clarify the appropriateness of cystic fibrosis camps. The infection control recommendations for people with this disease include the discontinuation of all cystic fibrosis–specific camps.1 These are based on published research documenting the transmission of deadly pathogens in social settings. The Cystic Fibrosis Foundation (CFF) Web site (www.cff.org) provides recommendations and information about how people with this disease can avoid germs.
Nurses are key in educating people with cystic fibrosis and their families about the risks of acquiring deadly pathogens when socializing with others who have this condition. The basic principles of infection control are effective in minimizing the spread of germs between people with cystic fibrosis, with one addition: those with cystic fibrosis should stay a minimum of three to six feet away from another person with the disease. By teaching people with cystic fibrosis and their families about these principles and the risks of socialization, nurses can influence the life—and thus the survival—of someone living with this deadly disease.
Thankfully, the Internet and technology now provide a wealth of resources and an opportunity for people with cystic fibrosis to connect and find support virtually. The CFF's Web site contains information in multiple formats—including Webcasts and videos—to help nurses educate patients and families about this disease. Additionally, on this Web site, nurses can read about the cystic fibrosis practice guidelines and the latest research.
Leslie Hazle, MS, RN, Cynthia George, MSN, FNP
Cystic Fibrosis Foundation Bethesda, MD
1. Saiman L, Siegel J. Infection control recommendations for patients with cystic fibrosis: microbiology, important pathogens, and infection control practices to prevent patient-to-patient transmission. Infect Control Hosp Epidemiol