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Creator: Jennifer Canvasser, MSW
NEC Society
Duration: 2:21
Journal: Advances in Neonatal Care
Jennifer Canvasser, founder and director of the NEC Society, discusses the critical importance of communication with parents of babies impacted by necrotizing enterocolitis. Jennifer’s son Micah died of complications related to necrotizing enterocolitis a month before his first birthday. The patient-family advocates within the NEC Society have emphasized that they were desperate for more information during their child’s hospitalization. Parents want to be part of their child’s care team, but they are reliant upon the providers to inform, engage and empower them to take on this active role.