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Epidermolysis Bullosa: A Case Study in Transport, Treatment, and Care

Price-Douglas, Webra PhD, CRNP, IBCLC; Diehl-Svrjcek, Beth MS, CRNP, CCRN, CCM, LNCC

Section Editor(s): KING, CHERYL MS, CCRN

doi: 10.1097/01.ANC.0000304967.46708.ea
Case of the Month

There are skin rashes, lesions, and disorders in the neonatal period that require emergent assessment and consultation. A neonate presented with epidermolysis bullosa and provided an opportunity for learning about this condition and various dermatologic resources, primarily DermAtlas. The neonate with suspected epidermolysis bullosa that is delivered in a community setting usually requires transport to a neonatal intensive care unit with pediatric subspecialty care. A case study involving the transport of a neonate with this condition is reviewed, followed by a discussion of the etiology, incidence, pathogenesis, diagnosis, and nursing care before and during transport and parental considerations. The resources available in the neonatal community, primarily DermAtlas, for the identification of epidermolysis bullosa and other dermatological conditions is explored.

Maryland Regional Neonatal Transport Program, and The Johns Hopkins Hospital Neonatal Intensive Care Unit, Baltimore, Maryland.

Address for correspondence: Webra Price-Douglas, PhD, CRNP, IBCLC, Maryland Regional Neonatal Transport Program, The Johns Hopkins Hospital, 600 North Wolfe St, Nelson 2–133, Baltimore, MD 21287; wpdougla@jhmi.edu.

© 2007 National Association of Neonatal Nurses